Living with Lupus and its Side Dishes
This is a blog entry I wrote on my other blog, that I don’t keep up to date- (Lupus Side effect). I thought I would share it with my readers.
Lupus is a lot like walking around in the dark not knowing which direction you want to go in. Each day is a new adventure in living with lupus. You never know what to expect. When a day is going along just right it’s hard to believe. It’s a lot like living in a dark room, and not knowing when someone is going to open up the door and says “IM BACK”. The life of lupus can be an agonizing nightmare or you can learn to roll with the punches and take what it gives you and punch it right back where it counts.
Life with lupus is a lot easier when you accept what it gives you to deal with then being in the feel sorry for me mode. Yes, I still have those moments but, since I’ve accepted that I am who I am and lupus doesn’t have an exit door. I do wish this disease to be a thing about the past. It has taken me years to accept that lupus has given me some gifts.
Life with lupus had given me the ability to appreciate the things that I never realized were sitting right in front of me. The sky has much to offer whether, it’s the puffy white clouds or the storm clouds rolling in. I appreciate the people around me and the things around me better. I have been made to slow down and it took me long time to accept I had to slow down. Initially, I slowed down too much and thought the world had ended because once again I was given the bad end of the stick. But I had to realize God must have given me a life with lupus to show me some kind of purpose. I am still searching and looking for the exact answers but, I know that one day I will have the answers. If the answers never come at least I know that I have kept on living and search for that small light at the end of tunnel of lupus.
One thing I would say to anyone living with a chronic illness is to remember just because your sick don’t mean it’s time to stop living. There is life after chronic illness. You have to remember to get back on the ship I call life. Sitting in a corner looking at the wall isn’t going to work in this life because once it’s got you; you’ve got to learn to live with it.
August 16 2008 12:03 am | Life with Lupus
