Comments on: The Word of the Week is Frustration

By: chronicchick

chronicchick — Thu, 28 Aug 2008 21:43:31 +0000

Ya,

I did find a way around the gardening thing. I put my garden in pots which is the only way I can do it. I make up the pots in my porch which keeps me out the sun enemy. Something that’s suppose to be your friend can be your enemy…..

By: Sue

Sue — Thu, 28 Aug 2008 05:22:29 +0000

The things that frustrate me about having lupus?
1. Feeling really crappy but not looking sick.
2. Having to avoid UVA/UVB light .. no gardening, no
more hanging out at the pool, no florescent light,
3. Copays for doctor visits and the cost of meds! Why
can’t they prescribe something that works AND is
affordable?
4. Getting 10 hours sleep and waking up exhausted.
5. Taking steroids. Bad, bad, really bad stuff.

I could go on forever but I won’t
Next time, maybe a list of what’s good about having a chronic illness? If you can come up with anything.

Sues last blog post..Hospital Antics

By: chronicchick

chronicchick — Fri, 22 Aug 2008 23:08:38 +0000

yes, I totally agree with you. My daughters ADHD brings me a lot of frustration. I love her a lot and its difficult to help her at times. Many times she tells me she feels like her head is spinning and I can understand that. We both at times can get quickly overwhelmed. I know she gets very frustrated with dealing with a mom that’s sick daily. I would not wish this on anyone especially a child. It takes a lot of patience. I think God decided I needed a lot of “teachings” in patience. I wrote about my garden in another post and that took much patience and I’ve been blessed with lots of growth and a few side dishes of bugs or birds. In my site I also wrote about acceptance and that’s difficult. Sometimes I have to put my self in someone elses shoes just to understand things better.

http://chronicchicktalk.com/2008/07/19/pictures-of-my-garden/

By: Viveca

Viveca — Fri, 22 Aug 2008 22:21:04 +0000

The hardest part for me is feeling helpless. My husband suffers from migraine headaches. Every time I think we have ‘em licked they come back. This week he has had a headache everyday. Sometimes I feel lonely for a partner. I’ve spent almost 50 years tending and tippy toeing around someone else’s invisible illness – not just his.

Yesterday I really had to admit that this may be the way it is vs. something to be fixed.

Today I am adjusting to that thought and looking for what I can control or change about myself to make life easier and happier.

So far here is my list:
1. Add a 1/2 comedy show everyday – UP the happy hormones.
2. Buy Lavender essence oil – that scent relaxed me.
3. Keep my focus on what is working in our lives instead of what is frustrating me.
4. Write a daily gratitude list.
5. Accept him exactly how he is right now vs how I hope he will be …
6. Stay connected to loving, positive friends and be that friend!

Great topic. Thanks.

Viveca

Vivecas last blog post..Happiness Study — Be happy live 7.5 to 10 years longer