Lupus has Changed my Life Forever

September 11th, 2008

I was once a physically strong woman.

It was gradually taken away from me.

Lupus has changed my life forever.

I once cared for others.

Now I have to accept help from others.

Lupus changed my life forever.

This is not the life I signed up for.

I once had dreams of many.

Lupus has changed my life forever.

Now, I just have to make it through the day.

I live with pain each day.

Lupus changed my life forever.

My family suffers with me.

They did not sign up for this either.

Lupus changed my life forever.

People say I don’t look sick.

I ask you ” What does sick look like?”

Lupus changed my life forever.

You say you understand, but you can’t unless you’ve lived with it.

You may understand if your family or friend is affected.

Lupus changed my life forever

What was once my life is now my life with lupus

Along the way lupus has taught me many things.

I’ve learned to appreciate the small things

To appreciate the good days, even if its just a simple smile.

Lupus changed my life forever.

I would not wish this disease on anyone no matter how cruel or evil they are.

Even my dogs are affected by lupus.

So you can’t ever say that animals don’t have compassion, because mine do.

Lupus changed my life forever.

They know when I flare and it shows.

You say I’m too young to be sick.

But lupus doesn’t care.

Lupus changed my life forever.

It tears famlies apart bit by bit.

My life has changed forever because of lupus.

I’ve learned to appreciate the simple things in life.

Lupus changed my life forever.


No Responses to “Lupus has Changed my Life Forever”

  1. LuAnn on September 12, 2008 1:41 am

    My husband’s maternal grandmother had lupus. I like your poem.

  2. Lorian on September 12, 2008 7:58 pm

    You’ve really captured what life with Lupus is like. Thank you for sharing!

  3. lotusflower on September 13, 2008 5:59 pm

    If you’re ailing with this kind of a disease what things do you avoid doing or eating, if at all?

    Godspeed!

  4. kristy on September 17, 2008 2:33 am

    arghhh.. i feel so angry with you too.. i %%%% hate lupus.. arghhhhhhhhhhhhhhhhhhh

  5. Jeanette on September 20, 2008 4:32 pm

    I understand I am a LUPUS VICTIM I am a strong women I am a personal trainer /fitness instructor sometime I just waked up in another world and sometime there are days that I am o.k I was diagnose with lupus 3 years ago with my pregnancy of my youngest child I suffered throw that pregnancy I had to inject myself with heprin I was HIGH RISK my son could have died he his my youngest out of three he is my mircale baby he is to special to me but I am hosting a LUPUS FUNDRAISER IT’S CALLED , DONATE YOUR WORKOUT’ ALL OF MY INSTRUCTORS AND PERSONAL TRAINERS ARE DONATING THERE WORK OUT TO PEOPLE AND I am donating my gym and my workout. The gym is called SHAPE & TONE ANY ONE CAN COME AND TAKE CLASSES or use the gym machines and weights OCT. 23 2008 FOR $2.00 9A.M-9P.M ALL THE MONEY COLLECT WILL GO TO THE LFA.We are still in need of volunteers for that day to help with many task any one can volunteer to help with asking for I.D OR HAVING PEOPLE SIGN WAIVERS EVERY ONE THAT VOLUNTEER THERE NAME WILL BE PUT ON A PLAQUE WITH OTHERS IN THE FIGHT AGAINST LUPUS THAT UGLY,WICKED,CRUEL MONSTER GOD BLESS EVEY ONE WE ARE IN IT ALL TOGETHER !!!!!

  6. Jeanette on September 25, 2008 2:17 pm

    FOR LUPUS FUNDRAISER

    SHAPE & TONE
    44 MONROE ST. PASSAIC N.J 07055
    (973) 458-0605
    shapeandtone4@verizon.net
    or
    dianna@lupus.org
    OCTOBER 23 2008 9 AM- 9 P.M
    EVERYONE IS WELCOME !!!!

  7. katrina on March 28, 2009 6:35 pm

    Lupus has changed my life forever too. People who do not have lupus have no idea how hard it is physiclly and emotionally.

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