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	<title>Comments on: Mc Donald&#039;s or Dr Office ? Do Tell</title>
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		<title>By: chronicchick</title>
		<link>http://chronicchicktalk.com/2008/09/mc-donalds-or-dr-office-do-tell/comment-page-1/#comment-688</link>
		<dc:creator>chronicchick</dc:creator>
		<pubDate>Fri, 17 Apr 2009 19:31:42 +0000</pubDate>
		<guid isPermaLink="false">http://chronicchicktalk.com/?p=452#comment-688</guid>
		<description>Christine,
I can totally empathize with you. I&#039;m fortunate to have help at home. I worked in a nursing home at one time so I can totally understand the fact that patients with family present get better care. My message to anyone with a loved one nursing home be vigilante. You are that person&#039;s advocate, but be reasonable because nursing assitants have thier hands full. Many times it was nothing to take care of 10 or more people. Some nights it was nothing to have 20 patients plus get some up in A.M. Its a wonder my back hurts so bad let along other issues. Make sure you take some notes before your appointment. I&#039;ve got memory issues thanks to a stroke from lupus and plan old memory issues otherwise. Take care of yourself

Chronic Chick</description>
		<content:encoded><![CDATA[<p>Christine,<br />
I can totally empathize with you. I&#8217;m fortunate to have help at home. I worked in a nursing home at one time so I can totally understand the fact that patients with family present get better care. My message to anyone with a loved one nursing home be vigilante. You are that person&#8217;s advocate, but be reasonable because nursing assitants have thier hands full. Many times it was nothing to take care of 10 or more people. Some nights it was nothing to have 20 patients plus get some up in A.M. Its a wonder my back hurts so bad let along other issues. Make sure you take some notes before your appointment. I&#8217;ve got memory issues thanks to a stroke from lupus and plan old memory issues otherwise. Take care of yourself</p>
<p>Chronic Chick</p>
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		<title>By: chronicchick</title>
		<link>http://chronicchicktalk.com/2008/09/mc-donalds-or-dr-office-do-tell/comment-page-1/#comment-687</link>
		<dc:creator>chronicchick</dc:creator>
		<pubDate>Fri, 17 Apr 2009 19:24:02 +0000</pubDate>
		<guid isPermaLink="false">http://chronicchicktalk.com/?p=452#comment-687</guid>
		<description>Christine,
I&#039;ve had issues with certain medications. i get so sick with the medication cymbalta. I feel like I have morning sickness morning, noon and night. Bad enough being in pain without adding vomiting to it. I&#039;ve had some really weird reactions to med.One of the meds I&#039;m on right now Its either be in extreme pain or deal with the side effects. Thanks for your comments.
Chronic Chick</description>
		<content:encoded><![CDATA[<p>Christine,<br />
I&#8217;ve had issues with certain medications. i get so sick with the medication cymbalta. I feel like I have morning sickness morning, noon and night. Bad enough being in pain without adding vomiting to it. I&#8217;ve had some really weird reactions to med.One of the meds I&#8217;m on right now Its either be in extreme pain or deal with the side effects. Thanks for your comments.<br />
Chronic Chick</p>
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		<title>By: Christine</title>
		<link>http://chronicchicktalk.com/2008/09/mc-donalds-or-dr-office-do-tell/comment-page-1/#comment-686</link>
		<dc:creator>Christine</dc:creator>
		<pubDate>Thu, 16 Apr 2009 00:49:23 +0000</pubDate>
		<guid isPermaLink="false">http://chronicchicktalk.com/?p=452#comment-686</guid>
		<description>One other thing...I think it is very easy for doctors to prescribe medications because they do not have to live with the side effects or possible long term harm that comes from taking them. I have been given flack for refusing certain meds, as if i shouldn&#039;t worry about the side effects which can be worse than the disease.</description>
		<content:encoded><![CDATA[<p>One other thing&#8230;I think it is very easy for doctors to prescribe medications because they do not have to live with the side effects or possible long term harm that comes from taking them. I have been given flack for refusing certain meds, as if i shouldn&#8217;t worry about the side effects which can be worse than the disease.</p>
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		<title>By: Christine</title>
		<link>http://chronicchicktalk.com/2008/09/mc-donalds-or-dr-office-do-tell/comment-page-1/#comment-685</link>
		<dc:creator>Christine</dc:creator>
		<pubDate>Thu, 16 Apr 2009 00:45:48 +0000</pubDate>
		<guid isPermaLink="false">http://chronicchicktalk.com/?p=452#comment-685</guid>
		<description>I am back and forth on doctors. I have been both helped and hurt by them. I don&#039;t think many of them do really know what it is like to live with chronic pain and disability.

I am kind of difficult because I want to control my care instead of just doing the next med on the list. I tend to do a lot of research and I have lots of questions, although I have a great rapport with them, I suspect they think I am a loon.

I have a visit next week, and for the first time I have a friend going in with me to support me. He convinced me I need the support because I am too sick right now to be assertive enough and think clearly enough. He told me how when he had cancer he realized at some point he needed someone to go with him and recruited his mom and she went with him to all of his doctors visits and it really helped him.

I am so fortunate for this friend and his offer of support, his recognition that I need it. I have never had this kind of help before, in 15 years! It would be great to have an advocate to go with you to the doctor, someone who understands your illness and how it effects you in real life. Someone who can remember to ask the questions, and stick up for you if need be.

And that brings to mind my years working in nursing homes, the patients who had family or feisty friends checking in on them regularly always got natural priority because no one wanted trouble. Those left to themselves who were too sick to speak up or even care got left for last. That is horrible isn&#039;t it? But these places were understaffed and the aides were often carrying double patient loads, so as much as you hustled you could not give equal time to all patients. This was a long time ago and maybe things have changed, but that is part of why I got out of the field, it was really depressing and there was nothing to be done except bust your tush and try to get everyone taken care of.</description>
		<content:encoded><![CDATA[<p>I am back and forth on doctors. I have been both helped and hurt by them. I don&#8217;t think many of them do really know what it is like to live with chronic pain and disability.</p>
<p>I am kind of difficult because I want to control my care instead of just doing the next med on the list. I tend to do a lot of research and I have lots of questions, although I have a great rapport with them, I suspect they think I am a loon.</p>
<p>I have a visit next week, and for the first time I have a friend going in with me to support me. He convinced me I need the support because I am too sick right now to be assertive enough and think clearly enough. He told me how when he had cancer he realized at some point he needed someone to go with him and recruited his mom and she went with him to all of his doctors visits and it really helped him.</p>
<p>I am so fortunate for this friend and his offer of support, his recognition that I need it. I have never had this kind of help before, in 15 years! It would be great to have an advocate to go with you to the doctor, someone who understands your illness and how it effects you in real life. Someone who can remember to ask the questions, and stick up for you if need be.</p>
<p>And that brings to mind my years working in nursing homes, the patients who had family or feisty friends checking in on them regularly always got natural priority because no one wanted trouble. Those left to themselves who were too sick to speak up or even care got left for last. That is horrible isn&#8217;t it? But these places were understaffed and the aides were often carrying double patient loads, so as much as you hustled you could not give equal time to all patients. This was a long time ago and maybe things have changed, but that is part of why I got out of the field, it was really depressing and there was nothing to be done except bust your tush and try to get everyone taken care of.</p>
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		<title>By: Kimberly @ AllAboutKimberly</title>
		<link>http://chronicchicktalk.com/2008/09/mc-donalds-or-dr-office-do-tell/comment-page-1/#comment-684</link>
		<dc:creator>Kimberly @ AllAboutKimberly</dc:creator>
		<pubDate>Sat, 20 Sep 2008 01:29:40 +0000</pubDate>
		<guid isPermaLink="false">http://chronicchicktalk.com/?p=452#comment-684</guid>
		<description>I have to say that my doctor is great about at least making me think he has all the time in the world for me, but my eye doctor is the best.  He actually makes notes about things in my personal life and will ask about them the next year. For a long time, I thought he truly remembered, but then happened to glance at some of the notes one time.</description>
		<content:encoded><![CDATA[<p>I have to say that my doctor is great about at least making me think he has all the time in the world for me, but my eye doctor is the best.  He actually makes notes about things in my personal life and will ask about them the next year. For a long time, I thought he truly remembered, but then happened to glance at some of the notes one time.</p>
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