Struggling to Find the Postives of Living with Lupus

September 26th, 2008

When I was in school, I despised writing or reading for that matter. Writing has become my release since being sick. I can express my thought and feelings on living with a chronic illness. It also helps me be an active advocate for lupus, chronic pain, and fibromyalgia. Its become an important therapy about living with all these chronic illness. Its been my way of making a positive out of a negative. For years I went through periods of being mad at the world because I was sick. I blamed myself and asked over and over “why me”. Its not been easy because I’m not happy what lupus has done to my life. I have periods of not being able to find simple words. I’ve called people crazy names and on a regular basis I call my daughter a cow. Its related to the stroke I had thanks to lupus. If it was not for lupus I probably wouldn’t have found my love of reading and writing. I read almost anything I can get my hands on. I tell my daughter that wisdom comes from knowledge. She’s yet to find my love of writing or reading. But slowly she’s seeing that reading isn’t that bad after all. I share my words with others to say that life after lupus can have some positives even if you do struggle each and every day from the pain and suffering. I live with the thoughts of I’m not going to be a victim of lupus, but a survivor of living with lupus.

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No Responses to “Struggling to Find the Postives of Living with Lupus”

  1. Trace on September 30, 2008 2:11 pm

    I decided my MS does not define me. It’s just a part of me the way I have brown hair and brown eyes.

  2. chronicchick on September 30, 2008 2:49 pm

    Trace,
    I applaud you for being able to find that strength to not let it define you. Its very difficult thing to do. I struggle with it everyday.

    chronic chick

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