Latest Entrecard Card DroppersI don’t know exactly where to start really. I had the doctors’ appointment from hell. Recently, I lost the doctor that validated my symptoms, in this post. that gave me a diagnosis of peripheral neuropathy after 4 years of horrible pain in my legs that was to the point of me screaming in pain. I went to the new doctor and I will never go back to that doctor’s office. He was a total jerk. He told me that my symptoms are psychology; mind you it can be caused by lupus and 30 % of it has no reason that’s found. Ask me if I had psychiatric disorder. Needless to say I am very pissed. He said that peripheral neuropathy does not vary from day to day, which is not true. Got pretty livid that I could not explain what caused the neuropathy, mind you LUPUS can cause it. On top of that he informed me that my old doctor did not know what he was talking about, but EMG’s don’t lie. He informed me that neuropathy does not come and go which is crap. You know and they wonder why people stay away from doctors. Then started on me about the lupus. Mind you I have 5 Doctors that confirmed my diagnoses. I have the old “it’s in your head crap before, but this Doctor beats them all. Then tries to give me a medication that you can not mixed with my other medication, but mind you he said the nerve pain is my head, talk about double talking. I take lyrica and you can not take Neurotin with it because they call Lyrica the super neurotin. I was told this by both my old neurologist and my rheumatologist whom made it very clear. You know it’s a crying day in heck when some quack-in-the-box, as my daughter calls him, which knows you for 5 minutes tell you that your freaking symptoms are psychological. I have not lived with lupus for over 7 years with blood tests to prove for some jerk to say this garbage. I am very upset. Some doctors just have no compassion. Why would I bring on my pain…? Then he informs me he wants to run another EMG because he does not agree with the operator, which was my old neurologist. Makes me wonder if there is a reason behind it as I know my neurologist left because of the politics at the office, which I heard with my own two ears. I got very upset about him wanting me to endure this test again; the EMG was the most painful test in my LIFE, I was almost in tears when he wanted me to have this test AGAIN. This was the worse test I ever endured and for him to say he wants to prove my symptoms are psychological is ridiculous, mind you LUPUS CAN CAUSE IT. Mind you I come home and my blood results are abnormal. So I guess he would say blood work is psychological too. I think NOT
Sorry for yelling, but This angers me so much, and I don’t get angry easy !!!!
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I think HE should have the EMG. Twice! How horrible for you. My neuropathy is in my hands and feet. Type2 diabetes. As bad as it was for me before the Lyrica came out, I still can’t imagine what it would be like to have it in my legs. If I were close enough I’d come over and help you scream. Men like that have no right to be called doctor. I sure hope you find a better one.
Clara,
Thanks for the support. Yeah its true they don’t have right to be a doctor. It seems that before you come across that way you should walk a mile in the person foot steps.
chronic chick
Ok I am a bit confused as to why he would tell you to take Neurontin, when technically it is in the same class as Lyrica except Lyrica seems to work better for most people with your illness. Unless you were having untoward side effects caused by the Lyrica this would be unfounded, and even unprofessional. Second if he thought your pain was psychological, which I can understand why it makes you angry. However there are some forms of Depression that can cause moderate to severe pain. Again however, if you have seen other doctors that have diagnosed you with Neuropathy, and Lupus, then he should not be questioning that. I assume you only saw this guy becuase your other Neurologist left the group. I would not see him again either, and would probably file a complaint with the group. Some doctors can be very good clinicians, but their bedside manner sucks. They should never pass med school if they have no compassion, or care for others feelings.
I’m so sorry that Quack-in-a-Box put you thru this. (hugs)
Melissa,
He was trying to give me the Neurotin on top of the lyrica. As I said in my post 2 of my other doctors said taking both are big no no. I know that Lyrica is actually a super neurotin. Yes, lyrica has helped a lot and I have no intention of going off lyrica.
Chronic Chick
I hope you find a better doctor. You don’t have to put up with a doctor like that. Even my Rheumatologist, who’s very understanding didn’t really get how my lupus was not controlled until I came into her office one of my bad days… then she got it. They really don’t understand until they’ve seen you in pain… except for this guy. I don’t know if he’ll ever “get it”.
i’m sorry to hear about this. i have to agree with clara, your doc should have it twice.
btw, you have been awarded, please grab it here.
I myself saw doctors for 4 years with pressure in my neck. It was horrible and they kept blaming it on my thyroid. They did sonograms and tests and kept telling me it was not big enough to be causing those symptoms. They treated me like it was in my head. Finally after so many years and not being able to breathe hardly at all a doctor finally listened and I had cancer. It took many specialists and doctors to realize it was in fact NOT all in my head. You listen to yourself and your body. NO doc can tell us what we feel!!!
Wow. Some doctors really can be a-holes. I’ve run across one or two myself, but this guy sounds like a special case. How he can also just dismiss the diagnosis of 5 other doctors is just beyond the height of arrogance and ignorance. Hopefully you can just not see him again? Sorry that you’re going through this mess.
I had this done to me by a couple doctors. One of them told me my disability doctor (who is published extensively in JAMA, etc) was a quack. All of them told me I must be depressed (hello? Pain causes depression!). I had one give me the MMPI and try to skew the results but my 3 other doctors nailed him. I spent close to $2000 on a private psych work up that confirm everything my doctors told me. And yep, my bloodwork was abnormal too! BTW – I told my insurer not to pay those other doctors and NEVER To recommend them to anyone else.
Be sure you see your primary physican and give him a report of everything that happen with this jerk and tell him it MUST be in his office notes!
Last thing, last month – after 15 years of disability, SSA FINALLY put me under PHYSICAL rather than MENTAL disability. My primary doctor had written MANY MANY MANY times. 15 years. That’s insane.
I can’t take Lyrica. It makes me more ill. I am little upset about it being touted like some wonder drug. When I tell people I can’t take it they look at me like I am ‘making up’ some reason to stay sick! Sheesh!
I’m so sorry that you had to go through such a bad experience. What is with doctors? Sometimes I think they act worse because we’re women.
geez. he should not be a doctor. i hope you are feeling a lot better now.
Just finished reading your entry from 1/14 … you have my sympathy! Sometimes, doctors are just clueless. I’m sorry you were treated so poorly. I absolutely understand how it’s easy to be second-guessed all the time when you have lupus. That happens to me a lot, too. Sending you good wishes and lots of hugs!! Hope your neuropathy is doing a little better this week. And I hope you find a kind, thorough and caring physician to help you through the tough times!
I just found your blog today, but I felt the need to commiserate. I am just getting over my recent MD appointment from hell (http://lissabird.blogspot.com/2008/12/body-project-part-i.html). I am toying with the idea that I might have FMS so I have been reading other people’s experiences. I hope you find another doctor who knows more about Lupus.