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I’m very concerned with your illness and pain.
I don’t know much about lupus, shame on me… I’ll learn from your blog
Stay strong and keep the hope
Dessy,
You can go to the Lupus Foundation to find out information on lupus
I’ve been living with this for four and a half years now. It is sooooooo frustrating! I do not have an “official” diagnosis of Lupus but my rheumatologist says that’s what it is. I guess I should be thankful that I don’t have enough symptoms for an “offical” diagnosis though. I have positive ana, mouth ulcers, all over muscle and joint pain/swelling, fatigue, chronically low vitamin D – (starting a RX for that again) hair loss and Raynaud’s disease. I am usually very upbeat but today I am just beat!
I am tired of living with daily pain that is invisible to everyone else!I just needed to vent a little and I appreciate that you have this site! Thanks!!!
Isn’t life swell? Makes one wonder why? Why not give me parkinson’s too? Why stop now? Geez, we gotta just laugh sometimes, I know with FMS even crying can hurt. Had a friend at old job, she had FMS, then Lupus, then died suddenly of a heart attack. I guess life just wants us to keep guessing.
Diane,
Yeah, it all does seem to hit you in the face like a pack of bricks. Yeah FMS can even hurt when someone hugs you too.
CC
Tina,
I know what you mean when you say its frustrating. Somedays I just feel like I’m going crazy.The most frustrating part is being exhausted walking across the room at times. The joint pain is just horriable.
CC
I used to take Ultram for pain but those pills made me loopier than I am with the brain fog from the Fibro. I would forget that I said something a minute after I said it. Thank goodness I didn’t drive then! Now I have a rhuematologist who actually treats my Fibro pain with injection when I need them. What a relief!
Connie Foggles,
Yeah, Some medications give you strange reactions.
CC
i’m a 69 yr old woman, living in pain also.
I have Fibro too among other things. I have
Stenosis of my back,that alone is painful.
I guess all of you are a lot younger than myself.
I feel fooliss complaning of my pain. Sorry to do that.
Wishing you all the best,
Dee
Deet,
Don’t ever feel folish complaing about your pain. It does something to you when you live with pain day after day with little relief. I’ll say a pray for you.
CC
Thanks so much cc. Very nice of you to be so
thoughful.
Dee
Deet,
Your welcome,we all need encouragement.
You know that saying is soo true. You don’t
know what you have until you lose it.
Some things we all take for granted at one
time or another,but then whn its not there,only
then do we realise how blessed we are.
So True, So True