Week 3 and We are Surviving Homeschooling with Lupus

This is our 3rd week of homeschooling. Its been really difficult at times. We’ve both had out spats back and forth. Its made things even more difficult because of my daughters ADHD. Monday she was being really difficult her attention span was not there at all. I had to tell her get it together or I’m going to let her read the story on her own. She did quickly straighten up. She struggles in language arts a lot. We’ve survived without a screaming match which is great. We are both adjusting to a lot of things. It don’t help that I’m dealing with the lack of energy because of the lupus. It makes it difficult, but don’t make it impossible. I do have my days where I have to lay day a lot, but we have made it.

Just Feeling Tired, But Can’t Rest

Today I feel tired and sleepy. I want to sleep, but that’s not an option. I feel kind of down. We finished school early which I was happy about.Then my daughter needed help on her piano stuff. She’s been learning to play by a piano book. She’s been doing pretty well until now. She gets frustrated and wants to give up. I had to explain to her that life has a lot of obstacles. I’m trying to teach her not to give up so easy. Her ADHD sometimes gets the most of her. When I was a little girl I was the same way. I gave up really easy. I don’t want her to be the same way. Giving up so easy can cause you to miss a lot of opportunities in life. I don’t think I’m as bad with that as I once was.

Another Belt and the Importance of Volunteering

Yesterday I was excited because my daughter earned another belt for Tae Kwon Do. It was the first time she tested out at her new tae kwon do place. The last place we left because of black mold issues. I was so proud of how she put all her might into all her kicks, punches, and self defense moves. They didn’t break any boards for this test out. I got to put her new belt for her the first time. Its part of the program reminding the kids that they wouldn’t be there without there parents.  She kept saying, ” You did a good job putting on my belt. ” It was sweet of her. Because truthfully I couldn’t put her belt on like she does. Its another thing that practice makes perfect.

Today she went to volunteer at the local library. She’s been doing this for about a month. The funny thing she hates to read,but loves to volunteer at the library. It makes me laugh because she has to read in order to file the books and find the lost books. I think its important that young people give back to the community because so many people now aday want want want, but don’t give back to the community. It gets her out the house and it gives me a break. Mom’s need breaks too.  This year homeschooling for the first year I want to make sure she gets lots of socialization as she can be really shy at times.

I’m Going On a Blog Trip, How About You?

I’m going on a blog trip and I’m inviting all the mommy’s in cyber space. Come and join me while I check out all the other Mommies hard work on the web. So often our hard work is taken for granted and many times we don’t give our self enogh credit. So we all need to put our feet up and join the other Mommies Traveling throught cyber space. Hope you have a happy Blog Trip, as I’m sure I will too……..

Learning Patience the Hard Way with Love

This past weekend has gone pretty well. Usually on Sunday’s my daughter who has ADHD has melt downs on Sunday’s. I don’t know why she does this. She’s been busy doing homework. She made the comment to me. I thought things are suppose to start off slowly. Well, I had to tell her ” Welcome to Highschool”. She’s the kind of kid that things need to run a certain way or I hear about it. Its difficult to deal with because of my many ups and downs of living with lupus. I don’t understand the whole thing with the ADHD, but sometimes its overwhelming. I wonder sometimes if God was trying to teach me to be patient. Well I think I got the message loud and clear now. It took until she was a teenager, but I did get the message. I really know what they mean when they say patience is a virtue for sure now.

How have your kids taught you patience with or without a chronic illness?

Lupus Rant with a Bit of Fatigue

Today, I’ve felt pretty crappy and it just happened to be my daughters first day of 9th grade. I felt really exhausted today. I wanted to go back to bed and start my day over again, but that’s easier said then done when your the teacher. I chose to home school her because the schools pretty bad. I don’t feel as bad right now, but then again I’m living with the heating pad. That may change five minutes from now, you know ? Sometimes I find myself wanting to eat and eat just to get a little  bit of energy. If you live with fatigue, lupus, or any other chronic illness you know exactly what I mean. I can only hope I feel a  lot better tomorrow. The transition over to winter is always difficult to me. I’ve wondered why this seems to be. I have issues changing over to most seasons. Sometimes I feel more like a weather transmitter then human, whatever that means. I know I know I’m blabbing on.

Sometimes its hard living with all this craziness. It seems to me that some how I’ve been given this card, but I can’t give it back. Yeah, I’m ranting and that’s just what I feel like doing. Its my blog and I’ll rant if I want too.. LOL Hope everyone else is feeling better, that might actually make up for how bad I feel. Thanks for reading all.

Question: Does anyone elese have issues with changing over the seasons or is it just me?

Daily Dealings with Teenager While Dealing with Lupus

It feels like each day last forever. I have been dealing with issues with my daughter. She’s got ADHD and has a hard time accepting that she’s going to grow up. She wants to stay that little girl. I have to admit many times I feel the same way, but I do want to see her grow up and be sucessful young lady. She has plans to go to college,just not sure what she wants to do. She is a great animal lover. Today she was down on herself real bad, but it changed when she went to tae kwon do. She got 2 strips on her belt which means she needs one more stripe until she can test out for her next belt. She has her ups and downs. Being a teen is difficult enough without all your emotions in an uproar.

Kids whose parents have chronic illness have so much to deal with. I know my daughter gets upset that mom don’t have the energy other parents have. It makes it difficult to deal with each day seeing disappoinment. She loves to run and especially shopping and the singer Avril Lavigne. I try to make up for things with her. I try to stay attune to her emotions but, at times its difficult. When you have a chronic illness our kids often miss out on somethings, but most of use make up with somethings else.

Bachelor Buttons Teach Me Patience

These two flower picture are bachelor buttons, my daughter took them using her hand to show them upclose. They took forever to bloom and at one point I thought about pulling them out because they looked more like grass, then a flower. They remind me a lot like carnations. I guess the long wait was worth it after all. It shows a lot that patience does pay off in many instances. Patience is not something I’m very good at in many ways. Somewhere I read that patience is a virtue- It seems to be so true. Having a child whose got ADHD teaches you patience in many ways, Its something I’m thankful for each day.

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A little Bit of An Update

This week has been interesting for many ways. My daughter starts a new tae kwon do class on Thursday; the new place seems to have more to offer her. They have a patch program a lot like girl scouts and more girls her age. She’s been doing tae kwon do for a little over 1 year. She’s still an orange belt and will be able to test out in 8 weeks. She’s got a new tae kwon do uniform that ties like a chef outfit, instead of pulling over her head. It’s hard to believe that summer is half way through.

My garden is coming along. I keep forgetting to get some pictures- (reminder to self get pictures). We had to transplant the tomatoes to a bigger pot because they were root bound. They now look a lot better in their new beautiful pots. My cucumber is busy climbing up the railing of the porch and looks good with its beautiful yellow flowers and creeping out like crazy. The green peppers are producing some beautiful big peppers. The red ones haven’t turned red yet. The tomatoes are still small and green, can’t wait to taste one.

I seem to be in a lupus flare, again! It seems to knock me on my butt real well. I can be feeling pretty good and wham it knocks me out. I’m trying to conserve my energy. I hate feeling this way… I want my “normal” life back

Crazy Hectic Week of Life

I haven’t been on much lately. This past week has been absolutely crazy. We’ve had night after night of tornado warnings. One night there was actually one spotted over our town from another state, and the mayor decided he didn’t want to scare the people, so he didn’t sound the alarm. The excuse was that it was almost out of the area, a lot of people are mad. So we’ve been in limbo for the last 2 weeks. Daughter has missed some tae kwon do because the storms coming barreling down. My female dog Darcy was so scared she jumped in the bath tub. She’s terrified of storms- looks like the creature on Jurassic Park that attacked the guy in the Jeep.

Yesterday, the home next to us burnt almost down and almost caught our home on fire as well. The tree in-between was on fire. We received a phone call to hurry up and get home because of our dogs: Darcy and Mason. I am very thankful to have my home and my pets today. It makes you appreciate the small things. The home is a total loss, but no one was hurt or killed so that’s the important thing. Time will tell what the cause of the fire was.