Plaquenil Eye Test

Lupus is My Life Poem

Living with lupus is full of ups and downs.

I’ve learned their are two ways to look at it.

Good and Bad……

I’d love to say that it’s easy…..

But it’s not………

Each day is a battle to think positive…..

I still have my negative days, but I refuse to give in…..

I still spend hours or days on the sofa dealing with lupus and fibromyalgia…

But I have more control over things…..

I’m more aware of what’s going on inside…..

I’m better prepared for lupus’ ups and downs…..

So I’m ready for the good and bad days……

Lupus may be my life, but it’s only part of my life….

Not running my life anymore……..

How is your life with lupus or fibromyaliga doing??

Refreshing Water from a Bottleless Water Cooler

Most people don’t like the taste of water, but we cannot live without it. Drinking from the tap in my town isn’t possible, the water tastes foul. Most people in my small town have water delivered or they pick up bottle water at the store. Our water  is delivered twice a month from a spring water company. I love the water, but I hate the hideous water bottle colors and they take up a lot of room. I wish the same refreshing bottle water came out my tap. Businesses can have a bottleless water cooler that dispenses hot and cold water that is similar to the typical water cooler without the need for storing water bottles. They come in both counter top and free standing in a variety of sizes to meet your employee’s needs. The water coolers come in cold/hot water, ice, and room temperature water. Drinking ice cold water is great for employees and clients at your business. Everyone will enjoy seeing your water cooler on the hot summer days and cold winter days. Leave out some tea bags and hot cocoa for the winter and some drink mixes for the summer. It’s a great way to keep your customers happy while they wait for you

Weekly Menu Meme Marvelous Menu

Monday: Oven Fried Chicken
Tuesday: Cold Ham and Cheese Sandwiches
Wednesday: Crispy Fried Green Tomato
Thursday: Macaronit and Cheese with Spam sandwiches
Friday: Hamburgers and Chipa

Staying Active with Chronic Illness

Does exercise help reduce your pain?

Are You on Stage with You’re Chronic Illness?

By Chronic Chick

Do you feel like you’re on stage while living with your chronic illness? I feel that way a lot because people don’t understand that my strength and abilities go up and down hourly. One day I may be able to clean the house and the next day I’m lucky to be able to get out of bed. It plain sucks, but it’s my life. I’ve lived with it nearly a decade so it has become the norm for me.
Since I’ve lived with lupus and fibromyalgia some days I’m in my wheelchair and other days I’m able to walk around. I used to feel very subconscious knowing what people were saying and thinking about me. I heard- I was faking how much pain I was in or she doesn’t look sick, or it cannot be that bad. I could go on about the snide remarks.

All of these nasty comments made me feel like I needed to act a certain way. And it stinks how other people’s thoughts make you feel like you have to act a certain way.
Finally, I’ve got to that point that the naysayers can say whatever they want to say. I am going to be myself and I am going to be myself. Walk a mile in my footsteps then tell me how I feel living with chronic pain.

Do you feel like you have to meet people’s expectations or feel like you’re on stage?

photo credit: Clarita

Recycle Reuse for Cell Phones

Did you know old cell phones equal cash? If you’re like me you’ve got several lying in drawers. Once I upgraded my phone I intended to recycle them, but I never got around to it. So it lies in my drawer and collects dust.  Little did I know, my cell phone could make me some cash. sell cell phone reminds me of search engine, except it finds the prices companies are paying for old cell phones. Once you’ve found the highest prices to recycle your phone you send it in. Some of the companies will pay for your shipping too. Sometimes broken phones are worth cash too. I’ve got three or four of them lying around. I looked up the phone that I have multiples of and it’s worth eighteen dollars. I was pleasantly surprised since the phone is several years old. Now, I’m glad I didn’t throw my phone into a recycling box at the cell phone company. Since a lot of the companies are going green people are doing it too. I am more conscious of things I use and I try to reuse.  So you’re cell phone is another way to add dollar signs to your piggy bank.

Taking Charge of my Health

Last week, I went to the rheumatologist to have my check up and lab work. My lab results won’t be in for a couple of weeks. He did the typical tests including checking my vitamin D level I always call about my test results. Why? I don’t want something to be found on my labs six months later that needed addressing. I know sometimes it annoys the nurse, but it’s my body and my health. It’s my way of being active in my own healthcare. Doctors  make mistakes just like patients make mistakes so I don’t want to fall through the cracks. Ultimately I’m the one that pays the consequences if something is missed. Usually two weeks is enough time to receive my results.

Do you call your doctor for test result? Should doctors call a patient even if the results are negative? It’s your turn.

I Love to Dress Up for Halloween

As a kid, I enjoyed dressing up anytime I could for a good dress up party.  I loved dressing  up as a witch for Halloween ugly warts and all.  I did this for five years. My mom tried and tried to get me to be something else.  I love going to Costume Stores.  But I didn’t want to be anything else. I was always the first one to dress up in a Plus Size Costumes .  I haven’t dressed up in a long time, but it would be fun to dress up one more time.  I would love to dress up as a butterfly with beautiful glitter purple wings.

Beautiful Beautiful Sky

Beautiful Blue Sky during a road trip. Do you like to take sky pictures? My daughter takes a lot of  pictures all the time.