Kids and Impulses

Monday I was really irritated with my daughter. I use a lap top for the computer as my feet swell a lot. Well she gets fixated on a certain thing and will not give up. This time it was a small crumb of something beside one of keys on my laptop. Well without my permission she tried to get this out and tore of my up arrow of my keyboard. So I was not very happy with her, but I did get over it after a while. I know have the key tapped on my keyboard as I don’t know how to put a key back on my laptop. Kids do the darnedest things. Needless to say she got a lecture on thinking before she reacts. It gets her in trouble at times.

A Trying and Tiring Week

This week its been really tough. My legs have been killing me. Its been really difficult to keep my focus on things. Its been really hard not to dwell on the pain. I’ve been trying not to think about it, but its easier said then done. This week homeschooling has been very trying while dealing with a teen with ADHD. I have to take a few breathers here and there because of the issues with her focus. It seems like she’s worse when I am in a flare up. I think its probably because she’s scared something is going to happen to me. I guess I can’t blame her because I am her whole world. We have always been close. I get told well she acts like you. My usual come back is she is my daughter after all.

Learning to be Parent and Teacher

For the past few weeks my daughter has been difficult about practicing her tae kwon do. I’ve had to use the mom/teacher card. I told her I would give her a bad grade if she did not practice. I believe she thought I would just give her the grade. Well she has started to practice this week. And after 4 days of practicing she asked me what her grade will be. I told her 4 days of practice is not enough she needs consistency. Its really tough being a mom, but I’m started to see just how hard being both teacher and mom. By no means to I regret it. Her stress level is better and really its giving me a chance to bond with her closer. That in its self is priceless. I love you My Daughter

A Smooth Day in Homeschooling with Lupus

We finished school early today and it was great. My daughters attention was really good so we were able to move throught everything smoothly. At lunch time she usually takes the dog for a walk and I think that helps her regroup and changes her focus. The dog needs to walk as he is over weight. We have been struggling to lose his weight. We get some of the weight off and then the weight is right back on him. We just can’t win with this. He is constantly wanting more and more food.

Hope everyone is having a good day in the life.

Learning Patience the Hard Way with Love

This past weekend has gone pretty well. Usually on Sunday’s my daughter who has ADHD has melt downs on Sunday’s. I don’t know why she does this. She’s been busy doing homework. She made the comment to me. I thought things are suppose to start off slowly. Well, I had to tell her ” Welcome to Highschool”. She’s the kind of kid that things need to run a certain way or I hear about it. Its difficult to deal with because of my many ups and downs of living with lupus. I don’t understand the whole thing with the ADHD, but sometimes its overwhelming. I wonder sometimes if God was trying to teach me to be patient. Well I think I got the message loud and clear now. It took until she was a teenager, but I did get the message. I really know what they mean when they say patience is a virtue for sure now.

How have your kids taught you patience with or without a chronic illness?

A Crazy Lupie Day with my ADHD Daughter

Tonight I am quit sore still dealing with the after maths of surgery on top of the lupus side effects. My daughter is driving me crazy with her ADHD. She has been very hyper all day. I feel like my head is spinning dealing with her. Her ADHD symptoms get worse in the evening. I’ve wondered if anyone else is going through the same thing or is it just me. I go back to the doctors on Friday to have my check up with the doctor to find out the results of the biopsy. I am keeping my fingers crossed because he found more then he expected. I am glad that I pushed to have it removed. Well I guess that’s all I have for tonight. Everyone have a wonderful weekend.

Daily Dealings with Teenager While Dealing with Lupus

It feels like each day last forever. I have been dealing with issues with my daughter. She’s got ADHD and has a hard time accepting that she’s going to grow up. She wants to stay that little girl. I have to admit many times I feel the same way, but I do want to see her grow up and be sucessful young lady. She has plans to go to college,just not sure what she wants to do. She is a great animal lover. Today she was down on herself real bad, but it changed when she went to tae kwon do. She got 2 strips on her belt which means she needs one more stripe until she can test out for her next belt. She has her ups and downs. Being a teen is difficult enough without all your emotions in an uproar.

Kids whose parents have chronic illness have so much to deal with. I know my daughter gets upset that mom don’t have the energy other parents have. It makes it difficult to deal with each day seeing disappoinment. She loves to run and especially shopping and the singer Avril Lavigne. I try to make up for things with her. I try to stay attune to her emotions but, at times its difficult. When you have a chronic illness our kids often miss out on somethings, but most of use make up with somethings else.

How To De-stress Your Meal Planning While Living With Chronic Illness

Finding ways to de-stress my life has become important to me. I become overwhelmed pretty easy since living with lupus. The evening times are my anxiety prone times. In those few hours my daughter comes home, dogs are more active, homework helping, and fixing dinner and eating dinner.

I had to reduce my stress level, so we started planning meals ahead of time. A lot of our recipes come from All Recipes. The site has a lot of simple recipes and an added plus is they are economical. Finding simple recipes is important while dealing with chronic illness. We plan our meals according to what is going on that day. If I have a doctor’s appointment it’s usually crock pot or eating out. On the days, my daughter has tae kwon do we either prepare meals ahead of time, or you guessed-crock pot. We put our menus on the refrigerator to remind us to pull out the meat.

Another thing, that’s helped me, is to only shop for 2 weeks of groceries. It takes less time to shop and takes less time to put things away. The putting away is my least favorite part of grocery shopping. I’m usually exhausted by the time we finish one shopping trip. I’ve had to teach myself not to over due things. It’s easier said then done.

The last thing, we do is avoid the rush hour shopping times. The busiest time here is early evening on weekdays and Saturday nights. During the day on Saturday’s is sudden death because everyone and there grandmother is out. In the evening on a Saturday night are the slowest times in my area.

All of the de-stressors have made my life easier. They have been a real life saver when dealing with a lupus and a teenager with ADHD.

My Daughter Dragging Her Feet

My daughter has been trying really hard to out smart her mother. Doing the dishes isn’t her strong suit. I finally got tired of fighting with her on the dishes, so I started helping her when I can. A simple load of dishes would take her 2 hours and sometimes longer. It’s no joke. She tries her best to use her ADHD to her advantage.

Lately, I’ve noticed that she’s been really dragging her feet on starting the dishes. I caught on after realizing she was trying to out smart her mother. So I decided Mom was going to drag her wheels/feet too. She would actually stand in one place wiping the same piece of counter top like it needed a serious sanding. I have to love her for trying to out smart her mother.

I have to admit that she’s pulled one over on me a few times. Her biggest thing is playing stupid like I didn’t tell her something. She likes to use my memory problems to her advantage. It really irritates me when I know I have told her something and she swears I didn’t tell her. I have a book that I write down things to remind me of things. The many things that lupus has taken away from me including my sharp memory. Sometimes the lupus fog is a lot like trying to drive through a heavy fog on top of a snow storm.