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Kids, Doctors and School Oh My

October 1st, 2009

We started school about three weeks ago and it’s been smoother then last year. I bought some software where my daughter can do her school work on the computer and it grades things automatically. It makes a big difference when you’re sick because I was beginning to think I might have to send her back to public school and that didn’t sit well with me. She hated public school because of all the tormenting of the other kids so I really felt torn. I had to pay a little extra for the software, but I needed something to make both of our lives better. It helps avoid the fighting with my daughter. I went to my rheumatologist last week and it seemed like a good appointment. He did a lot of blood work which made me feel like a human pin cushion. I hope my vitamin D levels come back okay. I’ve come to realize the levels won’t ever be normal. He did change the times I take a couple of my pills around to help with the morning stiffness and the pain level, but I’ve yet to see any difference. I need to make a phone call to the neurologist and I sent my medical release back in July. She was supposed to call me, but I’ve yet to hear from her. I’m not sure if I like her or not because she was too professional. Another words, I felt like she was stone cold, but sometimes the first visit doesn’t tell it all.

A Trying and Tiring Week

October 17th, 2008

This week its been really tough. My legs have been killing me. Its been really difficult to keep my focus on things. Its been really hard not to dwell on the pain. I’ve been trying not to think about it, but its easier said then done. This week homeschooling has been very trying while dealing with a teen with ADHD. I have to take a few breathers here and there because of the issues with her focus. It seems like she’s worse when I am in a flare up. I think its probably because she’s scared something is going to happen to me. I guess I can’t blame her because I am her whole world. We have always been close. I get told well she acts like you. My usual come back is she is my daughter after all.

A Smooth Day in Homeschooling with Lupus

September 24th, 2008

We finished school early today and it was great. My daughters attention was really good so we were able to move throught everything smoothly. At lunch time she usually takes the dog for a walk and I think that helps her regroup and changes her focus. The dog needs to walk as he is over weight. We have been struggling to lose his weight. We get some of the weight off and then the weight is right back on him. We just can’t win with this. He is constantly wanting more and more food.

Hope everyone is having a good day in the life.

Week 3 and We are Surviving Homeschooling with Lupus

September 9th, 2008

This is our 3rd week of homeschooling. Its been really difficult at times. We’ve both had out spats back and forth. Its made things even more difficult because of my daughters ADHD. Monday she was being really difficult her attention span was not there at all. I had to tell her get it together or I’m going to let her read the story on her own. She did quickly straighten up. She struggles in language arts a lot. We’ve survived without a screaming match which is great. We are both adjusting to a lot of things. It don’t help that I’m dealing with the lack of energy because of the lupus. It makes it difficult, but don’t make it impossible. I do have my days where I have to lay day a lot, but we have made it.

Another Day of Homeschooling, Link Exchange,

August 27th, 2008

Well, today we had another adventure in life. I’m still ajusting to teaching my daughter at home. Its been an opstacle with my daughter because she doesn’t retain what she’s learned for long. Each day I would have to reteach what they taught her in school. So I may as well teach her. She knows things untill she goes away from them.

Well tonight I feel icky.  I think its either burn out, weather, or the upcoming change of seasons. I always have a hard time transitions into the seasons. I hope people will understand it takes me time to get to things such as adding links. Sometimes all I can do is get through typing a little. So please anyone who asks  me to link up leave me a comment under my posts, as the shout board rotates and poof its gone. if I don’t get right back to you.  Thank you all that read my words of ups and downs of dealing with lupus, chronic pain, and fibromyalgia.

Insomnia and Homeschooling

August 26th, 2008

Well today we had our 2nd day of homeschooling. It turned out to be pretty intreasting. My daughter can be really emotional. She was mad because she got a bad grade. The tears were flying. The mom in me wanted to cave, but I am not being fair to her. So we survived day 2 just to start feeling like yuck. Its not easy getting up early when you have insomnia. I am bound and determined that we will survive.

Lupus Rant with a Bit of Fatigue

August 25th, 2008

Today, I’ve felt pretty crappy and it just happened to be my daughters first day of 9th grade. I felt really exhausted today. I wanted to go back to bed and start my day over again, but that’s easier said then done when your the teacher. I chose to home school her because the schools pretty bad. I don’t feel as bad right now, but then again I’m living with the heating pad. That may change five minutes from now, you know ? Sometimes I find myself wanting to eat and eat just to get a little  bit of energy. If you live with fatigue, lupus, or any other chronic illness you know exactly what I mean. I can only hope I feel a  lot better tomorrow. The transition over to winter is always difficult to me. I’ve wondered why this seems to be. I have issues changing over to most seasons. Sometimes I feel more like a weather transmitter then human, whatever that means. I know I know I’m blabbing on.

Sometimes its hard living with all this craziness. It seems to me that some how I’ve been given this card, but I can’t give it back. Yeah, I’m ranting and that’s just what I feel like doing. Its my blog and I’ll rant if I want too.. LOL Hope everyone else is feeling better, that might actually make up for how bad I feel. Thanks for reading all.

Question: Does anyone elese have issues with changing over the seasons or is it just me?