Friday's Frustrations #1

Some of the biggest frustrations I have are with living with the limits lupus puts on me, it sucks and you have no idea how many times a day I wish it leave me alone and go back where it came from. I am so sick and tired of the pain every day, let alone the fatigue, yeah I know I’m ranting, but I’m not saying sorry for ranting.

My daughter and I got into an argument because she wants to rush through her school work to surf the internet and doesn’t want to ask me any questions. We did get it settled, but if she and I don’t get in an argument at least once a week something is wrong.

Some of them are better of not written here.

Filed under Lupus Rant, Meme's | Comments (3)

Lupus Rant Again Sorry…

I feel like crap today. My pain level has been through the roof today and none of my meds are helping at all. Its just been a crappy day all day so far and guess what? RAIN is coming in Its no wonder I feel like crap. I did manage to hook my heating pad up to an extension cord so I could tolerate the pain somewhat during school. I wish I knew of a place to get a cordless heating pad instead of the cord. I want to find something I can warm in the microwave to help with my pain. I see diffrent things just so unsure of where  to purchase one.  Well now I ordered a book for my daughters school work and well the person sent me the wrong book. ACK… Now we are going to be behind on some of her labs. Geez……. Well I guess we are back to square one….. Well I just hope the rest of today will be better.

Lupus Robbed Me of My Energy !!!

I am struggling with my energy level, It gets to early afternoon and I’m totally exhausted. I could understand if one of my meds were changed, but they haven’t got a clue what to do to help. Its crazy to feel so tired when you do so little. Its not like I’m working out in a Gym or something. Geez I hate this damn lupus and all it does to me.

Does anyone know what could help with my energy level, I’m at a loss.? The doctor says its LUPUS, I hate LUPUS grrrrrr……..

Falling and I Can't Get Up

Really I don’t know where to start. Its been a really rough week for me. I had a really bad fall a few days ago. My dogs leash got wrapped around my leg and I went flying. I shouldn’t have been walking to begin with. I was having a crappy day with my gait(walking). My balance was really bad. I should have been in my wheelchair, but I wasn’t. I fell and hurt my knee and the back of my knee. My whole left leg is really sore. Thanks to this crap I’m in a flare and really don’t want to post. I want to lay down in bed and go to sleep. I feel horriable today , but I already have obligations. I hate this crap when it knocks me on my but. I’m really tired, but can’t rest. Well I’m back in my wheelchair totally for now. I guess My Septemeber flare is hear to visit. The pain level gets so bad during these times.  This week I got to the rhemotogist, no doubt to be stuck once again. I feel so exhausted from all this crap. It has such crappy timing. I know I’m ranting. I have enough pain to deal with, without falling. This Lupus stuff just plain old sucks.

Rant On and On….Wordpress Crazyiness

Well tonight I’m pretty tired. Sometimes dealing with wordpress is a lot like making your head spin around and around. I was helping another blogger with some tweaks and well none of the files I uploaded wanted to unzip. How crazy is that. Bad enough I feel like crap without wordpress being a royal pain in the but. Then I am avoiding updating wordpress because there is so many updates to make. I have yet to find an easy way to do it. I manually upgrade instead of using a ftp that has drop and drag, which I can’t seem to find a out which ones are deccent. If only it was easier to upgrade. Sometimes I miss blogger, but reallly not. But I try and try it keeps my mind from melting down, which seems to happen very easily since living with lupus. I never seem to have enough energy to get things done. Many times I feel guilty because I have to ask my daughter for so much help because of my lack of energy. This disease seems to take its tool on everyone. I go back to the rhemuotologist this month. I look for him to check my Vitamin D levels again. Well I know I’m going on,but I don’t seem to understand why this crazy disease and its side dishes do all this to my mind, body and soul.   Well I’m off again…

Rant About Darn Pharmacy and Doctor's Hours

Well I’m on another rant today. I get up feel half way good then boom afternoon comes and I totally feel really yucky. It don’t help that I ran out of one of my medications because I thought it had a refill because the bottle had a refill and then the insurance company made the pharmacy call my rheumatologist. When n they are only around one time a week it makes it difficult to get medications refilled. SO my advice to you all just cause you got one refill don’t always mean you really want it cause the pharmacies/insurance companies can’t count. Its frustrating because I feel like I’m starting from scratch with my medication for nerve damage. It’s the one medication that keeps me from going out of my mind with the pain. Yes, I’m ranting, but if I don’t It wouldn’t be my page.

Lupus Rant with a Bit of Fatigue

Today, I’ve felt pretty crappy and it just happened to be my daughters first day of 9th grade. I felt really exhausted today. I wanted to go back to bed and start my day over again, but that’s easier said then done when your the teacher. I chose to home school her because the schools pretty bad. I don’t feel as bad right now, but then again I’m living with the heating pad. That may change five minutes from now, you know ? Sometimes I find myself wanting to eat and eat just to get a little  bit of energy. If you live with fatigue, lupus, or any other chronic illness you know exactly what I mean. I can only hope I feel a  lot better tomorrow. The transition over to winter is always difficult to me. I’ve wondered why this seems to be. I have issues changing over to most seasons. Sometimes I feel more like a weather transmitter then human, whatever that means. I know I know I’m blabbing on.

Sometimes its hard living with all this craziness. It seems to me that some how I’ve been given this card, but I can’t give it back. Yeah, I’m ranting and that’s just what I feel like doing. Its my blog and I’ll rant if I want too.. LOL Hope everyone else is feeling better, that might actually make up for how bad I feel. Thanks for reading all.

Question: Does anyone elese have issues with changing over the seasons or is it just me?

A lupies life is full doing too much !

Today was busy for me. Now I am paying for it by feeling like I’ve been hit by a mack truck that came strolling by in all its glory. I hate when I feel this way. I’ll probably be nursing my ouch’s for the next few days. You know us lupies know just how  to overdue things. I hope it don’t last long. I’m not looking forward to the transition into fall this year because I have gone into major flares since my life with lupus and its side dishes. Ya I know its a small entry for me, but I felt inclined to share with you all.