October 19th, 2009

A girl has to have her shoes and my daughter is no different, she loves this style of shoes. She’d buy out the shoe store if I could afford them all, not that I’ll buy them all for her. From seeing so many kids that get everything turn out not to appreciate the small things, I’d never dream of giving her everything.

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October 16th, 2009

Some of the biggest frustrations I have are with living with the limits lupus puts on me, it sucks and you have no idea how many times a day I wish it leave me alone and go back where it came from. I am so sick and tired of the pain every day, let alone the fatigue, yeah I know I’m ranting, but I’m not saying sorry for ranting.
My daughter and I got into an argument because she wants to rush through her school work to surf the internet and doesn’t want to ask me any questions. We did get it settled, but if she and I don’t get in an argument at least once a week something is wrong.
Some of them are better of not written here.
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October 15th, 2009

1. So are we going to have a good Friday or are we going to argue all day over nothing?
2. Hopefully a good thing is what’s up ahead.
3. I love to write, I could eat and sleeping writing, yeah I know it’s crazy,but so is lupus, so were even.
4. I’d love to enjoy something new of some sort.
5. I walk a mile in my own footsteps, but not many could do the same.
6. Not living in fear all the time is the true elixir of life!
7. And as for the weekend, tonight I’m looking forward to again watching Ghost Whisper and Medium, tomorrow my plans include taking my daughter to tae kwon do, but I’m not sure if it will happen yet and Sunday, I want to get out of this darn house!
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September 1st, 2009
My daughter has been volunteering at library for over a year. I’m so proud of how hard she’s been working there. Its funny she didn’t like in the beginning. Now she loves it so much that she can’t wait to work again. She helps sort books, file books, color papers for the little kids and a lot of other things. I think it’s important to teach your kids to volunteer because it builds character and teaches responsibility. It helps her work with the community, which teaches her a lot of things. It helps her do something she enjoys away from dealing with my lupus.
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May 29th, 2009
Having a teenage daughter, I have enlightened her about all obstacles of growing up. We had the typical Mother-Daughter talks about the facts of being a woman. As she’s got older we have a lot of talks about the real world. I have found that some of the talks are easier and some are harder. Trying to explain things without her being scared of the real world has been difficult as she’s a high anxiety teenager. One of the hardest things to explain to her why woman have hair on their legs, but we have to shave them. Yeah, I know it sounds crazy, but that’s one of her biggest concerns. She doesn’t like to have even one hair on her legs. She’s at that age that the smallest things seem like the end of the world. Finally, I told her about getting permanent hair removal when she gets older is an option. I explained that she should check into all her options prior to having any optional procedure done. I did look it up myself and found some good information about it online about it feeling like a small sting on the skin which is good because she doesn’t cope with pain well. That probably goes back to having a Mom who lives with chronic pain. I did explain to her that it would take multiple times to remove all the hair. This seems to give her some piece of mind until the next teenage saga and trust me their will be many more.
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January 22nd, 2009
Monday I was really irritated with my daughter. I use a lap top for the computer as my feet swell a lot. Well she gets fixated on a certain thing and will not give up. This time it was a small crumb of something beside one of keys on my laptop. Well without my permission she tried to get this out and tore of my up arrow of my keyboard. So I was not very happy with her, but I did get over it after a while. I know have the key tapped on my keyboard as I don’t know how to put a key back on my laptop. Kids do the darnedest things. Needless to say she got a lecture on thinking before she reacts. It gets her in trouble at times.
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December 10th, 2008
This week is a very exciting week for me. My baby is turning 15. I can’t believe my eyes when I look at her with amazement. Its hard to believe that 15 years have passed since I gave birth to her. She is the best daughter a mother could ask for. She’s endured the ups and downs of me living with lupus. Its been really hard on her I know. I wish that she would not have to see sick day and night at times. Its not easy putting her through it and I’m not the best person at hiding my pain. Sometimes I think she is difficult because she’s scared of what will happen to her Mom. I am just so excited that she will have a Birthday this week. Its an exciting time of the year. My Mom was born a day before my daughter. My Mom was actually mad because she was not born on her Birthday.
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November 22nd, 2008
My daughter and I are taking a break from school this week. I have been looking foward to taking a break during Thanksgiving.In public schools they don’t give the kids a week of school. I bought some stuff to make chocolate chip cookies with my daughter. I hope I have enough strength to make cookies with her. We enjoy doing small things together. I am limited so we try to do what we can together. Today she is at her volunteer job which she does every week. When she first started volunteering she wasn’t sure she’d like it, but she really does love it now. Its funny because she does not like reading at all, but loves to volunteer at the library. I hope I don’t have a flare this week. I hope everyone has a safe Holiday. Happy Thanksgiving.
Filed under Life with Lupus, Parenting, homeschooling | Comment (1)
October 17th, 2008
This week its been really tough. My legs have been killing me. Its been really difficult to keep my focus on things. Its been really hard not to dwell on the pain. I’ve been trying not to think about it, but its easier said then done. This week homeschooling has been very trying while dealing with a teen with ADHD. I have to take a few breathers here and there because of the issues with her focus. It seems like she’s worse when I am in a flare up. I think its probably because she’s scared something is going to happen to me. I guess I can’t blame her because I am her whole world. We have always been close. I get told well she acts like you. My usual come back is she is my daughter after all.
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October 9th, 2008
For the past few weeks my daughter has been difficult about practicing her tae kwon do. I’ve had to use the mom/teacher card. I told her I would give her a bad grade if she did not practice. I believe she thought I would just give her the grade. Well she has started to practice this week. And after 4 days of practicing she asked me what her grade will be. I told her 4 days of practice is not enough she needs consistency. Its really tough being a mom, but I’m started to see just how hard being both teacher and mom. By no means to I regret it. Her stress level is better and really its giving me a chance to bond with her closer. That in its self is priceless. I love you My Daughter
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