Girl with Lupus Dies After DCF Takes Her From Parents
I was blog hopping to my friend Michelle and learned of the death of a 16 year old girl with lupus dies. DCF took her away because she wanted to try different medications for treatment. It horrifies me that DCF would take away a child from her home while she fights for her life. Chelsey Cruz wanted to try something that may not give her the horrible side effects of medications taken by lupus patients.
In my opinion this girl was more of an adult then any one else. It maddens me that a child so sick could be yanked out her home because of disagreement of medications. I know myself that I don’t always agree with the treatment doctors prescribe. I have had to reduce medications or refuse to take medications because of side effects. This girl is more of an adult then many adults now a day. When someone has dealt with a chronic illness such as lupus they should be able to make medication choices. I’m sorry but if it’s my body I will chose what I take in.
I pray for the family and friends of Chelsey Cruz. I pray that the family will find some healing after the death.
Links to Story
Walk A Mile In My Foot Steps Then Tell Me How it Feels……. ( my thoughts).
March 17 2008 09:06 pm | Life with Lupus and Lupus Rant
March 17th, 2008 at 11:34 pm
Hello, its time for me too see you, hope you have a happy week, I’ll be seeing you around, bye
March 18th, 2008 at 2:41 am
I couldn’t have said it any better, with diseases like ours, we don’t get to choose what HAPPENS to our bodies~we are at it’s mercy. But it is our constitutional right to choose how to treat it. At least I hope it is. I have to follow this story to see what happens in the lawsuit.
It is so very sad.
March 18th, 2008 at 12:11 pm
Sis is it ok if I like to your story from my blog? Oh my gosh, your last blog from Mar 13th sounds like how I feel. I have pneumonia on top of this lupus, and still trying to run mom from Dr. to Dr. and emergency rooms and a 4 day stay in the hospital last week that almost killed her, so I had to stay and protect her, which is where I got the pneumonia. This is a horrible thing to say, but I am so tired, so much pain, can no longer get medical care, so I wish lupus would take me out of here instead of this young girl who died!! Lupus fatigue is indescribable, pneumonia pain is indescribable, put them together and I am a walking zombie. Too sick to even get myself a drink or something to eat after I get home from taking mom to doctors, and no matter how much she wears me out, I don’t get any help physically or medically. She CAN get help when she feels really bad.
March 18th, 2008 at 12:13 pm
OOPS I meant can I LINK to this story from my blog. I’m an editor and so tired I didn’t even proofread my last comment. That shows how tired I am.
March 18th, 2008 at 2:45 pm
This is not the first case of this I’ve heard of, but when i read about it yesterday on the web I was outraged as well. Our government strongarms people, esp. those with children into doing horrible medical procedures/ drugs. that is not the land of the free. that is a police state.
when i decided i didn’t want to do chemo anymore, I just quit. i did not announce it to my doctors, or the clinic. i just quit going. i have lupus. i wonder if they would have been so non-chalant if i ahd cancer? maybe, because i was an indigent (no money) patient. sometimes it pays ot be invisible!
i’ve had this disease for 16 years and havelearned there is no point in arguing with the doctors sometimes. so if i have a real hardass who won’t listen to reason, i jsut say OK then i do what i want to do anyway.
this girl wanted to quit the meds (understandable- i hate them too- i think we all do) and go to dr fuhrman, who does natural healing through diet. i have his book and plan to see him myself. but it is not an either/ or situation. in fact, he carefully weans you off the pills while doing the diet.
if i had the opportunity to get in a time machine and advise this girl adn her poor family i would say continue going to the regular doc, but *also* go to dr fuhrman. when the doc hands you prescriptions, say thank you, see you next month, then let dr fuhrman (who is an MD) help you decide when you can taper off the drugs.
if you suddenly stop taking prednisone or any of the drugs used to control lupus, you will get very very sick. you have to taper.
i think it’s wrong what they did to Chelsey and her family, and other families who do not wish to take toxic drugs and go through horrible procedures. I’m just saying there are ways to work around the system. It’s like dealing with an unfair work or parental situation. You don’t go at them head-on. You work around them. You may be right, but trying to prove your point to them isn’t worth the abuse you’ll take.
September 3rd, 2008 at 12:12 am
Thanks for the informative post.. and thanks for adding our comment to the blog. I am subscribing to your feed so I don\’t miss the next post!
September 3rd, 2008 at 10:52 pm
Acai Berry,
Thanks for visiting my blog and subscribing to my feeds
chronic chick