March 2nd, 2008
Lupus affects each person differently. In the last 6 years, I’ve had a stroke thanks to the lupus. I have issues with my speech at times. The inflammation from the lupus can cause me to lose my ability to speak at times. At other times I can’t get the correct words to come out of my mouth. These are the most trying times. I have to figure out other ways to communicate. I’ve learned to not try speaking because I just get more frustrated. I usually find myself something to keep busy. I am thankful that I can type and write when I have these flare ups.
Trying to do more then a couple things at a time is more then I can handle. I’ve had to learn to do one thing at a time. On occasions I can do a couple of times, but anymore is too much. It did not affect me this way before I was sick. I was pretty good at multiple tasks at one time. I have to pick what needs to be done now and what can be done later. At times I can’t get any of the things done that I want to do. There are times I have all these plans to do certain things and end up going into a lupus flare. One of the most frustrating things is when I can’t get any of the things done. There are the times when I am so tired everything is a major chore. My exhaustion is something I can only explain by saying I feel like I have a large pile of bricks hooked to my back.
Filed under Life with Lupus | Comments (7)
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Have you read the Spoon Theory? It’s a way of decribing what it can be like to live with a chronic illness and was written by someone with lupus and fibro: http://www.butyoudontlooksick.com/the_spoon_theory/
I can relate to the ‘bricks’. I’m sorry you’re flaring right now. My thoughts and prayers are with you
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Thank you for stopping by my blog. I know how you feel about not being able to get things done that you need too. I finally have a diagnosis after feeling like this for more than a year. I’ve had to reprogram myself to do things little by little. Before I’d wake up and spend 2 hours cleaning my house before everyone got up and now I have to take it room by room and hope I have the energy to finish.
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