The Word of the Week is Frustration
The word of the week is frustration. Frustration is something I live with each and every day. Lupus kind of makes things go this way. . There are days where the only thing that keeps me going is my family. It’s the smiling faces of my family or the silly things that my dogs do. My male dog Mason was barking at his retractable leash one day. We had put the leash on the ground pole of our porch and every time he moved it made a whine noise. It was really funny watching him bark at the leash for no reason. You see he tries to act like he is tough. In reality he is just a big baby.
Sometimes the frustration can be more than I can bear. It makes me want to lose my mind sometimes. It’s the wishing that I had my energy back and my life back. Once upon a time I worked as a CNA. Ya, it was a dirty job, but it was a job that I really loved. I was able to take care of others and it made me feel useful. I was doing for them what I would want to do for myself. It’s hard to be in there shoes in some aspects. It upsets me when people complain about there jobs because really they don’t know what they really do have. So my advice to all you that hate your jobs either get yourself a different job or be quiet. I’m sorry I am so blunt about it, but I feel very strong about it. 
What is frustrating about living with a chronic illness to you? Share your story here. I will chose my favorite and write a post linking that persons blog in my post entry. So Share your frustrations here….
August 20 2008 02:39 pm | Lupus Rant and Word Of The Week
August 22nd, 2008 at 5:21 pm
The hardest part for me is feeling helpless. My husband suffers from migraine headaches. Every time I think we have ‘em licked they come back. This week he has had a headache everyday. Sometimes I feel lonely for a partner. I’ve spent almost 50 years tending and tippy toeing around someone else’s invisible illness – not just his.
Yesterday I really had to admit that this may be the way it is vs. something to be fixed.
Today I am adjusting to that thought and looking for what I can control or change about myself to make life easier and happier.
So far here is my list:
1. Add a 1/2 comedy show everyday - UP the happy hormones.
2. Buy Lavender essence oil - that scent relaxed me.
3. Keep my focus on what is working in our lives instead of what is frustrating me.
4. Write a daily gratitude list.
5. Accept him exactly how he is right now vs how I hope he will be …
6. Stay connected to loving, positive friends and be that friend!
Great topic. Thanks.
Viveca
Vivecas last blog post..Happiness Study — Be happy live 7.5 to 10 years longer
August 22nd, 2008 at 6:08 pm
yes, I totally agree with you. My daughters ADHD brings me a lot of frustration. I love her a lot and its difficult to help her at times. Many times she tells me she feels like her head is spinning and I can understand that. We both at times can get quickly overwhelmed. I know she gets very frustrated with dealing with a mom that’s sick daily. I would not wish this on anyone especially a child. It takes a lot of patience. I think God decided I needed a lot of “teachings” in patience. I wrote about my garden in another post and that took much patience and I’ve been blessed with lots of growth and a few side dishes of bugs or birds. In my site I also wrote about acceptance and that’s difficult. Sometimes I have to put my self in someone elses shoes just to understand things better.
http://chronicchicktalk.com/2008/07/19/pictures-of-my-garden/
August 28th, 2008 at 12:22 am
The things that frustrate me about having lupus?
1. Feeling really crappy but not looking sick.
2. Having to avoid UVA/UVB light .. no gardening, no
more hanging out at the pool, no florescent light,
3. Copays for doctor visits and the cost of meds! Why
can’t they prescribe something that works AND is
affordable?
4. Getting 10 hours sleep and waking up exhausted.
5. Taking steroids. Bad, bad, really bad stuff.
I could go on forever but I won’t
Next time, maybe a list of what’s good about having a chronic illness? If you can come up with anything.
Sues last blog post..Hospital Antics
August 28th, 2008 at 4:43 pm
Ya,
I did find a way around the gardening thing. I put my garden in pots which is the only way I can do it. I make up the pots in my porch which keeps me out the sun enemy. Something that’s suppose to be your friend can be your enemy…..