Comments on: The Many Obstacles of Living with Chronic Illness http://chronicchicktalk.com/2008/08/the-many-obstacles-of-living-with-chronic-illness/ Just another WordPress weblog Sat, 31 Dec 2011 12:50:59 +0000 http://wordpress.org/?v=2.9.2 hourly 1 By: chronicchick http://chronicchicktalk.com/2008/08/the-many-obstacles-of-living-with-chronic-illness/comment-page-1/#comment-575 chronicchick Thu, 04 Sep 2008 04:00:49 +0000 http://chronicchicktalk.com/?p=251#comment-575 Kristy, Thanks for visiting my blog. Yes, Lupus sucks sucks ! chronic chick Kristy,

Thanks for visiting my blog. Yes, Lupus sucks sucks !

chronic chick

]]> By: kristy http://chronicchicktalk.com/2008/08/the-many-obstacles-of-living-with-chronic-illness/comment-page-1/#comment-574 kristy Wed, 03 Sep 2008 16:05:46 +0000 http://chronicchicktalk.com/?p=251#comment-574 hey.. i enjoy reading ur blog so much.. even though i just stumbled upon it while googling.. i have sle too.. it sucks.. i must say it ruined almost everything i thought would be great for me.. learning how to face it, deal it and accept it is !@#$%^&*.. but time flies it's almost 5 yrs since i got lupus.. i didn't realised that till i start typing this to you.. but ur posts are so encouraging and real for an sle patient.. the anger, the annoyance, the ranting, the pessimistic etc.. do keep on posting in ur blog.. i'll be here encouraging you on the other side of the world.. kristy hey.. i enjoy reading ur blog so much.. even though i just stumbled upon it while googling.. i have sle too.. it sucks.. i must say it ruined almost everything i thought would be great for me.. learning how to face it, deal it and accept it is !@#$%^&*..

but time flies it’s almost 5 yrs since i got lupus.. i didn’t realised that till i start typing this to you.. but ur posts are so encouraging and real for an sle patient.. the anger, the annoyance, the ranting, the pessimistic etc..

do keep on posting in ur blog.. i’ll be here encouraging you on the other side of the world..

kristy

]]> By: chronicchick http://chronicchicktalk.com/2008/08/the-many-obstacles-of-living-with-chronic-illness/comment-page-1/#comment-573 chronicchick Sun, 24 Aug 2008 19:40:22 +0000 http://chronicchicktalk.com/?p=251#comment-573 Lisa, Thanks for your long comment and response to my post. Planing is something of the past Lisa,

Thanks for your long comment and response to my post. Planing is something of the past

]]> By: chronicchick http://chronicchicktalk.com/2008/08/the-many-obstacles-of-living-with-chronic-illness/comment-page-1/#comment-572 chronicchick Sun, 24 Aug 2008 19:36:02 +0000 http://chronicchicktalk.com/?p=251#comment-572 I can totally understand the not being able to function some days. Some days I feel like I haven't slept in years and simply go through the motions of things. I can totally understand the not being able to function some days. Some days I feel like I haven’t slept in years and simply go through the motions of things.

]]> By: Lisa Copen http://chronicchicktalk.com/2008/08/the-many-obstacles-of-living-with-chronic-illness/comment-page-1/#comment-571 Lisa Copen Sun, 24 Aug 2008 17:49:31 +0000 http://chronicchicktalk.com/?p=251#comment-571 For something so impossible to see, you described in wonderfully. I think we all cope with these same issues and though we are always sorry to hear of others in pain, it's nice to know there ARE lots of people who do understand if we can find them (don't you love the internet?) I specifically thought these were great points you made: --The hardest obstacle was accepting that I had to live with this illness day after day. (I went through that same thing... didn't really like the word "chronic" at all) --Some days, I don’t feel so bad and then there are other days that I just plain feel like every train in town is out to get me. (Friday night/Sat was one of those for me, worst pain in years, whole left shoulder froze up and the kind of pain you will do ANYTHING to stop NOW!) --For a long time I became very angry about there reactions to my illness. I’ve come to believe that if they want to be in denial its there business and I can’t let that define me. (been there, done that; even wrote a book on it to help ME get through that journey ("Why Can't I Make People Understand? Discovering the Validation Those with Chronic Illness Seek and Why") and the ironic thing is... when you are the author and then you read your book 2 years later, you can't really argue with the author not getting YOUR experience! -- Short distances are not so bad or if I know I can sit down from time to time. Then there are days I can’t walk at all. (And it varies minute to minute for me too. Got out of the car at a restaurant last night and this elderly couple was sitting outside probably wondering why I was moving so slow.. and just as I got in front of them my whole knee cap slid into another place and I leaned over and gasped. They looked at me and I said, "Bad knees." But the weird thing? Part of me was glad they knew something was seriously wrong and I didn't just look like I was poking along..., lazy or something) -- Before I got sick I could plan things, now I can only have tenetive plans. (Yep, my saying to most things is... "Lord-willing!") Thanks for your blog, I'm enjoying reading it and your writing style too! Lisa Copen Founder National Invisible Chronic Illness Awareness Week www.invisibleillnessblog.com -- For something so impossible to see, you described in wonderfully. I think we all cope with these same issues and though we are always sorry to hear of others in pain, it’s nice to know there ARE lots of people who do understand if we can find them (don’t you love the internet?)

I specifically thought these were great points you made:
–The hardest obstacle was accepting that I had to live with this illness day after day. (I went through that same thing… didn’t really like the word “chronic” at all)

–Some days, I don’t feel so bad and then there are other days that I just plain feel like every train in town is out to get me. (Friday night/Sat was one of those for me, worst pain in years, whole left shoulder froze up and the kind of pain you will do ANYTHING to stop NOW!)

–For a long time I became very angry about there reactions to my illness. I’ve come to believe that if they want to be in denial its there business and I can’t let that define me. (been there, done that; even wrote a book on it to help ME get through that journey (“Why Can’t I Make People Understand? Discovering the Validation Those with Chronic Illness Seek and Why”) and the ironic thing is… when you are the author and then you read your book 2 years later, you can’t really argue with the author not getting YOUR experience!

– Short distances are not so bad or if I know I can sit down from time to time. Then there are days I can’t walk at all. (And it varies minute to minute for me too. Got out of the car at a restaurant last night and this elderly couple was sitting outside probably wondering why I was moving so slow.. and just as I got in front of them my whole knee cap slid into another place and I leaned over and gasped. They looked at me and I said, “Bad knees.” But the weird thing? Part of me was glad they knew something was seriously wrong and I didn’t just look like I was poking along…, lazy or something)

– Before I got sick I could plan things, now I can only have tenetive plans. (Yep, my saying to most things is… “Lord-willing!”)

Thanks for your blog, I’m enjoying reading it and your writing style too!

Lisa Copen
Founder
National Invisible Chronic Illness Awareness Week
http://www.invisibleillnessblog.com
–

]]> By: Melissa, Multitasking Mama http://chronicchicktalk.com/2008/08/the-many-obstacles-of-living-with-chronic-illness/comment-page-1/#comment-570 Melissa, Multitasking Mama Sun, 24 Aug 2008 12:07:26 +0000 http://chronicchicktalk.com/?p=251#comment-570 That was a really good post and described exactly how I feel most days. I really identify with the planning part, as well. I am a Type A- my career is a professional organizer and since I was diagnosed with MS in January there are days I can't do anything or days I can function till midday, etc. It is incredibly difficult to accept those limitations and not try to push yourself anyway...thanks for the post! <abbr><em>Melissa, Multitasking Mamas last blog post..<a href="http://organizedlifebydesign.com/2008/08/22/problem-with-procrastination/" rel="nofollow">Problem with Procrastination</a></em></abbr> That was a really good post and described exactly how I feel most days. I really identify with the planning part, as well. I am a Type A- my career is a professional organizer and since I was diagnosed with MS in January there are days I can’t do anything or days I can function till midday, etc. It is incredibly difficult to accept those limitations and not try to push yourself anyway…thanks for the post!

Melissa, Multitasking Mamas last blog post..Problem with Procrastination

]]> By: chronicchick http://chronicchicktalk.com/2008/08/the-many-obstacles-of-living-with-chronic-illness/comment-page-1/#comment-569 chronicchick Sun, 24 Aug 2008 02:08:58 +0000 http://chronicchicktalk.com/?p=251#comment-569 Ya, sometimes its very hard to explain exactually how it feels to live with this crap. The only word to explain is it "SUCKS". Need I say anymore Ya, sometimes its very hard to explain exactually how it feels to live with this crap. The only word to explain is it “SUCKS”. Need I say anymore

]]> By: Connie http://chronicchicktalk.com/2008/08/the-many-obstacles-of-living-with-chronic-illness/comment-page-1/#comment-568 Connie Sun, 24 Aug 2008 01:22:54 +0000 http://chronicchicktalk.com/?p=251#comment-568 You did a beautiful job of explaining what it's like to live with an invisible chronic illness. We just need to live one day at a time with lots of hope and a good support system. Keep going GF! BTW, I'm following you on Twitter now. Follow me back. ConnieFoggles <abbr><em>Connies last blog post..<a href="http://mychroniclife.com/2008/08/22/i-hate-cooking/" rel="nofollow">I Hate Cooking</a></em></abbr> You did a beautiful job of explaining what it’s like to live with an invisible chronic illness. We just need to live one day at a time with lots of hope and a good support system.

Keep going GF!

BTW, I’m following you on Twitter now. Follow me back. ConnieFoggles

Connies last blog post..I Hate Cooking

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