Chronic Chick Talk

I was blog hopping to my friend Michelle and learned of the death of a 16 year old girl with lupus dies. DCF took her away because she wanted to try different medications for treatment. It horrifies me that DCF would take away a child from her home while she fights for her life. Chelsey Cruz wanted to try something that may not give her the horrible side effects of medications taken by lupus patients.

In my opinion this girl was more of an adult then any one else. It maddens me that a child so sick could be yanked out her home because of disagreement of medications. I know myself that I don’t always agree with the treatment doctors prescribe. I have had to reduce medications or refuse to take medications because of side effects. This girl is more of an adult then many adults now a day. When someone has dealt with a chronic illness such as lupus they should be able to make medication choices. I’m sorry but if it’s my body I will chose what I take in.

I pray for the family and friends of Chelsey Cruz. I pray that the family will find some healing after the death.

Links to Story

Mother’s Rage Lives On

Girl in Medical Dispute Dies

Cruz Letter 

Walk A Mile In My Foot Steps Then Tell Me How it Feels……. ( my thoughts).

The lupus had me totally wore out. I am so lacking in energy, wheeling across the floor makes me feel like crap. I hate what this illness has done to my body. I want to do so many things. Well lupus has a mind of its own. Just using the computer wears me out. It zaps what energy I do have out of me. I have tried to eat just about anything to boost my energy level. I’ve tried chocolate, caffeine, protein and carbs. It does not help at all. I will be glad when this flare passes. I am grateful to be able to type this tonight, but man this is so tiresome. I feel more like I’ve walked a marathon then wheeled across the room just to type this up. I pray God will release the devil in me and many others called lupus. It sure does suck. I feel like every breath has been taken away from me. I don’t know why this illness does this to me. I want a few good days. I am really hating winter and the transition to spring. God give me strength.

I’ve been trying to set up this site for about a week and parts of is very frustrating. I have found setting up this site to be mind boggling. The site is coming along, but I need to do a lot more work on the site. I want my message board to have a link back to my home page and it’s turned out to be more of a chore, then I would expect. I know with some persistence and when my lupus will cooperate I will be able to get this site exactly where I want it, meanwhile I’m working on this site and my starter site over at http://chronic-chick.blogspot.com/. I am working to improve my site over here too. Maybe too much for me, but I’m determined to get this site up.