Nothing Like a Flopping Fish

Well I write to you all beat up. I decided to be brave at the wrong time. I tried to walk when I can to keep the strength up in my legs. Well bad choice in the ice and snow. I was walking behind my wheelchair and I slipped one time and was able to catch myself. The next time I was not able to catch myself I landed in the snow like a fish flopping in the water right on my left wrist much like doing a belly flop in the pool. There was ice under the snow on my wheelchair ramp. If I don’t have a big fall at least every few months there’s something wrong. Last time, I fell was right out of my chair because I lost my grip on my chair. Geez, nothing like feeling like a flopping fish. Now I am going to try and take it easy and try to stay on my feet.

This One Cakes them ALL

I don’t know exactly where to start really. I had the doctors’ appointment from hell. Recently, I lost the doctor that validated my symptoms, in this post. that gave me a diagnosis of peripheral neuropathy after 4 years of horrible pain in my legs that was to the point of me screaming in pain. I went to the new doctor and I will never go back to that doctor’s office. He was a total jerk. He told me that my symptoms are psychology; mind you it can be caused by lupus and 30 % of it has no reason that’s found. Ask me if I had psychiatric disorder. Needless to say I am very pissed. He said that peripheral neuropathy does not vary from day to day, which is not true. Got pretty livid that I could not explain what caused the neuropathy, mind you LUPUS can cause it. On top of that he informed me that my old doctor did not know what he was talking about, but EMG’s don’t lie. He informed me that neuropathy does not come and go which is crap. You know and they wonder why people stay away from doctors. Then started on me about the lupus. Mind you I have 5 Doctors that confirmed my diagnoses. I have the old “it’s in your head crap before, but this Doctor beats them all. Then tries to give me a medication that you can not mixed with my other medication, but mind you he said the nerve pain is my head, talk about double talking. I take lyrica and you can not take Neurotin with it because they call Lyrica the super neurotin. I was told this by both my old neurologist and my rheumatologist whom made it very clear. You know it’s a crying day in heck when some quack-in-the-box, as my daughter calls him, which knows you for 5 minutes tell you that your freaking symptoms are psychological. I have not lived with lupus for over 7 years with blood tests to prove for some jerk to say this garbage. I am very upset. Some doctors just have no compassion. Why would I bring on my pain…? Then he informs me he wants to run another EMG because he does not agree with the operator, which was my old neurologist. Makes me wonder if there is a reason behind it as I know my neurologist left because of the politics at the office, which I heard with my own two ears. I got very upset about him wanting me to endure this test again; the EMG was the most painful test in my LIFE, I was almost in tears when he wanted me to have this test AGAIN. This was the worse test I ever endured and for him to say he wants to prove my symptoms are psychological is ridiculous, mind you LUPUS CAN CAUSE IT. Mind you I come home and my blood results are abnormal. So I guess he would say blood work is psychological too. I think NOT

Sorry for yelling, but This angers me so much, and I don’t get angry easy !!!!

More Links on Perphrial Neuropathy

Lupus Foundation of America

Mayo Clinic

Miller Center U Chicago

mskreport

NIH

E medicine

Economy Rant

With Christmas only a few days away, I have mixed emotions about the holiday. Ya, I know its sad but its simply how I feel. I have a lot of I wish I Had’s. So many people have no home to call their own and this makes me sad. I wish I had a way to help these people, but I feel like my hands are simply tied. Its so sad that our economy is in such turmoil and it took so long for some people to realise just how bad things are. The gas prices went up, but peoples income did not go up. Its irritating to see so many people hurting and nothing done about it. Its sad that big companies are more important then the small fries in this world. If it wasn’t for the small fries the big fries would not have anything. Its very very sad that our economy is so bad. I just don’t understand why it took so long for the “Powers to be” to see things.  I guess its easier to wear Rosy glasses, then to do anything about it.  Its hard to purchase healthy food, but don’t have the “healthy” food income that they say we need, but sorry folks I won’t give up my chocolate. I know I have been on a rant her, but this just plain old pisses me off when the powers to be take food and clothing and homes away from so many people.

Another Medication to add to the Mix

A couple of days I went to the doctor I am on an antibiotic.  I hate going to the doctor for medications like I need another medication. So I started my 10 days of taking antibiotic yesterday. I hate medications, but where would we be without them. I will be glad when I am finished with the antibiotic. I have had a really rough week spent a lot of time laying down because of a flare. Its days like this when I really appreciate my lap top computer. I have my feet up which is something I have to do most of the time. Happy Thursday to Everyone.

A Crappy Few Days for Me

I have been really feeling bad. I’ve had a migraine for 3 day and I feel like I’ve been hit by the local train station ran me over. I am still feeling pretty bad. I am forcing myself to do a couple of posts. Sometimes it helps to get your mind off the pain. I hate being in pain everyday. We are suppose to have some snow tommorow. I am not looking forward to snow. It always makes me achy all over. I hope this flare and migraine passess soon. Happy Weekend to Everyone…. I hope I feel better soon because Flares SUCK. I can say that in all caps because their is no other way to explain them…

Lupus Rant Again Sorry…

I feel like crap today. My pain level has been through the roof today and none of my meds are helping at all. Its just been a crappy day all day so far and guess what? RAIN is coming in Its no wonder I feel like crap. I did manage to hook my heating pad up to an extension cord so I could tolerate the pain somewhat during school. I wish I knew of a place to get a cordless heating pad instead of the cord. I want to find something I can warm in the microwave to help with my pain. I see diffrent things just so unsure of where  to purchase one.  Well now I ordered a book for my daughters school work and well the person sent me the wrong book. ACK… Now we are going to be behind on some of her labs. Geez……. Well I guess we are back to square one….. Well I just hope the rest of today will be better.

Appointment Cancelled 3 times in a Row

After the 3rd appointment for my daughter being cancelled it gets very annoying. I am not sure if I should find a different health care provider for her. Its down right annoying to deal with this as a parent. I realize the excuses may be real, but its very annoying when you show up for an appointment and they don’t have the decency to even call to tell you the health care provider is not going to be in for the day. I am just in a ranting mood because Its hard enough to make it to an appointment as I only have so much energy for the day. Its a big energy waster and chances are they won’t reschedule the appointment for another 2 weeks. This is plain old crazy. How many times is too many times to cancel an appointment for one person? I guess that’s the question. I know life is life , but three times canceling is plain old crazy…..

Lupus Robbed Me of My Energy !!!

I am struggling with my energy level, It gets to early afternoon and I’m totally exhausted. I could understand if one of my meds were changed, but they haven’t got a clue what to do to help. Its crazy to feel so tired when you do so little. Its not like I’m working out in a Gym or something. Geez I hate this damn lupus and all it does to me.

Does anyone know what could help with my energy level, I’m at a loss.? The doctor says its LUPUS, I hate LUPUS grrrrrr……..