The Pros and Cons of Snow Days

All it has been doing is  snow for t he last couple of weeks. The snow affects me by increasing my pain level.It is hard to get around with a cane and a wheel chair in the slushy snow.  I  fell when I was walking in the house a week ago, but I did not get hurt. My wheelchair has a mind of its own when I wheel  over ice. I am counting down the days until spring.I u have a flare with the lupus every year when the  seasons change. I am praying the snow and cold does not stay very long. My boy dog, Mason, loves the snow, he  plows the snow with his nose. Then he comes in the house covered with snow so and we have to dry him off with a towel. Snow days have pros and cons, but to me the cons outweigh the pros.

Anyone for the Flu Times 3?

For the past week, it has been really bad dealing with the lupus. I could hardly stand all the pain that was overwhelming my body. I felt like I had the flu times 3 all at once. If you have lupus or fibromyalgia you know what I mean. I felt like all of my nerves were shorting out with the fire they were shooting. I hate dealing with all of this day after day I feel like I am going to pull my hair out, but I do not have the strength to pull it out. All I wanted to do was sleep but the pain made that near impossible.

Lupus Butterfly Rash

Really, I need to go to bed as I’m pretty tired, but have a habit of pushing myself to my limits. It’s been a busy day with my daughter going to tae kwon do and her volunteering at the library. Today, I did treat myself, I purchased some cosmetics. I bought 2 new lip sticks, cover girl foundation, and new black eyeliner pencil. I don’t wear the make up all the time, but helps hide the butterfly rash that appears across my cheeks and over the bridge of my nose. It doesn’t cover it completely, but it does help me feel a little better when I look in the mirror. It’s bad enough having lupus without the constant reminder when I look in the mirror.

Friday’s Frustrations #1

Some of the biggest frustrations I have are with living with the limits lupus puts on me, it sucks and you have no idea how many times a day I wish it leave me alone and go back where it came from. I am so sick and tired of the pain every day, let alone the fatigue, yeah I know I’m ranting, but I’m not saying sorry for ranting.

My daughter and I got into an argument because she wants to rush through her school work to surf the internet and doesn’t want to ask me any questions. We did get it settled, but if she and I don’t get in an argument at least once a week something is wrong.

Some of them are better of not written here.

Filed under Lupus Rant, Meme's | Comment (0)

Tin Man for Sale

I cannot believe its fall already. I love the leaves changing, but I don’t like the aches and pains that go with the cold weather. I’d soon fast forward to spring then deal with winter. I do have to admit I do like to look at the first snow fall, but I don’t like feeling the cold chill in my body from the damp cold weather. I think the hardest part of the day is digging me out of bed in the morning. I’d soon throw the covers back over my head, but my body won’t allow me to do it. I feel like the Tin Man on the Wizard of OZ in the morning. I know I have to get up so I can take my medication so I can get ready for the day and give the Tin Man a reprieve until the next morning. I’d soon retire him then deal with him, but he refuses to leave. If anyone would like to take the Tin Man off my hands I’d be willing to give him away, but the only catch is I’ve got a no return policy.

The Heat is On

Lately, my feet have been giving me a real fit. I’ve tried heat and it just doesn’t work to numb the pain. I have tried ice packs and well it numbs them for a while, but it chills me to the bone. Chilling to the bone makes me ache all over. I just cannot win. I wish there was a lotion or something else to put on them. They get so bad I cannot walk on them because they feel like hot pokers. Luckily, I have my wheelchair as I cannot take even a few steps without horrible pain in my feet and legs. I do use a wheelchair when I cannot walk, but the pain in my legs just makes things so unbearable. When they are flared up I keep them elevated. The problem is I have nerve damage in both legs and well when it rains leg pain it pours. I do take a medication called Lyrica and it does help, but it’s not a cure all. I hate how the lupus limits things in my life. I hate LUPUS with a passion.

Nothing Like a Flopping Fish

Well I write to you all beat up. I decided to be brave at the wrong time. I tried to walk when I can to keep the strength up in my legs. Well bad choice in the ice and snow. I was walking behind my wheelchair and I slipped one time and was able to catch myself. The next time I was not able to catch myself I landed in the snow like a fish flopping in the water right on my left wrist much like doing a belly flop in the pool. There was ice under the snow on my wheelchair ramp. If I don’t have a big fall at least every few months there’s something wrong. Last time, I fell was right out of my chair because I lost my grip on my chair. Geez, nothing like feeling like a flopping fish. Now I am going to try and take it easy and try to stay on my feet.

This One Cakes them ALL

I don’t know exactly where to start really. I had the doctors’ appointment from hell. Recently, I lost the doctor that validated my symptoms, in this post. that gave me a diagnosis of peripheral neuropathy after 4 years of horrible pain in my legs that was to the point of me screaming in pain. I went to the new doctor and I will never go back to that doctor’s office. He was a total jerk. He told me that my symptoms are psychology; mind you it can be caused by lupus and 30 % of it has no reason that’s found. Ask me if I had psychiatric disorder. Needless to say I am very pissed. He said that peripheral neuropathy does not vary from day to day, which is not true. Got pretty livid that I could not explain what caused the neuropathy, mind you LUPUS can cause it. On top of that he informed me that my old doctor did not know what he was talking about, but EMG’s don’t lie. He informed me that neuropathy does not come and go which is crap. You know and they wonder why people stay away from doctors. Then started on me about the lupus. Mind you I have 5 Doctors that confirmed my diagnoses. I have the old “it’s in your head crap before, but this Doctor beats them all. Then tries to give me a medication that you can not mixed with my other medication, but mind you he said the nerve pain is my head, talk about double talking. I take lyrica and you can not take Neurotin with it because they call Lyrica the super neurotin. I was told this by both my old neurologist and my rheumatologist whom made it very clear. You know it’s a crying day in heck when some quack-in-the-box, as my daughter calls him, which knows you for 5 minutes tell you that your freaking symptoms are psychological. I have not lived with lupus for over 7 years with blood tests to prove for some jerk to say this garbage. I am very upset. Some doctors just have no compassion. Why would I bring on my pain…? Then he informs me he wants to run another EMG because he does not agree with the operator, which was my old neurologist. Makes me wonder if there is a reason behind it as I know my neurologist left because of the politics at the office, which I heard with my own two ears. I got very upset about him wanting me to endure this test again; the EMG was the most painful test in my LIFE, I was almost in tears when he wanted me to have this test AGAIN. This was the worse test I ever endured and for him to say he wants to prove my symptoms are psychological is ridiculous, mind you LUPUS CAN CAUSE IT. Mind you I come home and my blood results are abnormal. So I guess he would say blood work is psychological too. I think NOT

Sorry for yelling, but This angers me so much, and I don’t get angry easy !!!!

More Links on Perphrial Neuropathy

Lupus Foundation of America

Mayo Clinic

Miller Center U Chicago

mskreport

NIH

E medicine

Economy Rant

With Christmas only a few days away, I have mixed emotions about the holiday. Ya, I know its sad but its simply how I feel. I have a lot of I wish I Had’s. So many people have no home to call their own and this makes me sad. I wish I had a way to help these people, but I feel like my hands are simply tied. Its so sad that our economy is in such turmoil and it took so long for some people to realise just how bad things are. The gas prices went up, but peoples income did not go up. Its irritating to see so many people hurting and nothing done about it. Its sad that big companies are more important then the small fries in this world. If it wasn’t for the small fries the big fries would not have anything. Its very very sad that our economy is so bad. I just don’t understand why it took so long for the “Powers to be” to see things.  I guess its easier to wear Rosy glasses, then to do anything about it.  Its hard to purchase healthy food, but don’t have the “healthy” food income that they say we need, but sorry folks I won’t give up my chocolate. I know I have been on a rant her, but this just plain old pisses me off when the powers to be take food and clothing and homes away from so many people.

Another Medication to add to the Mix

A couple of days I went to the doctor I am on an antibiotic.  I hate going to the doctor for medications like I need another medication. So I started my 10 days of taking antibiotic yesterday. I hate medications, but where would we be without them. I will be glad when I am finished with the antibiotic. I have had a really rough week spent a lot of time laying down because of a flare. Its days like this when I really appreciate my lap top computer. I have my feet up which is something I have to do most of the time. Happy Thursday to Everyone.