Comments on: Lupus Talk Bits

By: Chronic Chick

Chronic Chick — Fri, 19 Feb 2010 05:10:42 +0000

Dustee,
The best solution for you is to keep yourself busy and try not to diagnosis yourself before you get to the doctor. I went through years of doctors tell me it was in my head. Finally, my primary doctor sent me to an excellent nerologist who listened to me and fought for me. He did the right tests which gave me a feeling of validation.
CC

By: Dustee

Dustee — Thu, 18 Feb 2010 09:44:27 +0000

My initial ana test has come back positive, and i have a vitamin d deficiency. My primary physician is transferring me to a rheumatologist, but I can’t get in for 2 more months. Is there anything I can do in the meantime while waiting for more conclusive test results?

By: chronicchick

chronicchick — Thu, 04 Feb 2010 21:12:58 +0000

Doree,
Hi, glad to see you came by. You might want to share the blog with your Mom. It is such a huge struggle dealing with everything that goes with this stuff.
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By: Doree

Doree — Wed, 03 Feb 2010 00:05:37 +0000

Oh My Gosh! I feel like I am just talking to a brick wall when I talk to my Mother. She thinks that everything is going to be OK. She never wants to watch my children for me and give me a day of rest. I have a husband, but he works alot. I also deal with the low vitamin D. It just feels good to know that I am not alone. Thanks!

By: chronicchick

chronicchick — Thu, 07 Jan 2010 05:20:49 +0000

Alicia,
I understand the Vit D deficiency all too well. My daughter just received a WII so I am thinking about trying it out.

By: Alicia

Alicia — Sun, 20 Dec 2009 05:25:41 +0000

I just received a letter with a prescription from my Rhumetologist for Ergocalcifer 50,000 IU’s to take for the next 12 weeks due to my Vit D levels being 15. I have been very adamant about not taking so many of these dang medications that are so toxic to our bodies and trying my best to get it through diet. I ‘ve noticed no one pn the post has mentioned strength building exercise. Ladies we have to exercise! I know how we hurt and are very tired but try the Wii system and I send love and support to all! and ask in return you send some my way because my biggest battle is family that just don’t understand!
Jamalicia

By: chronicchick

chronicchick — Wed, 04 Nov 2009 05:24:40 +0000

Jackie,
I’m on mega doses of D on top of my regular dose. They cannot get the level up for nothing.
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By: Jackie

Jackie — Tue, 03 Nov 2009 22:10:12 +0000

I have a low vitamin D and it got down to an 8 and they put me on high doses of vitamins but now it is back down to 24. I have osto and they want me to come in to talk about more drugs. Is anyone else taking meds for this
thanks Jackie

By: chronicchick

chronicchick — Sat, 31 Oct 2009 00:32:33 +0000

I haven’t been on that drug. I am dealing with low vitamin D again. I know how frustrating lupus can be. Hopefully you’ll find your answers somewhere
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By: rebecca humes

rebecca humes — Mon, 26 Oct 2009 23:14:54 +0000

i was wonderful if anyone is doing the chemo RITUXAN. i am getting ready for my 5th treatment and i am afraid. i hate being afraid. if you have been taking this drug i would love to hear from you. thanks.