Comments on: Lupus Talk Bits

By: admin

admin — Mon, 05 Sep 2011 03:42:25 +0000

Becky,
I know it’s very difficult. The most important thing I’ve learned is keeping my mind busy. Do you like crafting? games on computer? Find a hobby you’ll look forward to doing. Hang in there. I know where you are since I’ve felt that way. There are a lot of great programs out there to help with things. Feel free to email me…..

By: Becky reyes

Becky reyes — Thu, 01 Sep 2011 17:32:42 +0000

I have been in pain many years due to Fibro,Lupus,degenerative bone disease in my spine so last year I quit my job and went on dissability. I am now still in pain but depressed and broke!!!I guess I can take more pain meds now that I am at home, but now I constantly worry how to pay my bills. Life is very hard when your given so many issues u have to dael with sometimes I wish God would just take me!

By: admin

admin — Mon, 22 Aug 2011 03:40:49 +0000

Margie,
So sorry to hear your fighting with the lupus. I hate taking the medications, but I’m thankful for the medications. Make sure you have your vitamin d level checked. My teeth have been an issue for since my teen years.

By: Margie Fields

Margie Fields — Mon, 15 Aug 2011 21:57:07 +0000

I am so glad I found this blog, I have lupus my mom an two of her nieces its been in our family for over forty years it strange it treats each one of different, I lost my hair my scalp itches me to death, my kidneys, my lungs I take ton of med twice a day. I try not to get depress I been told by doctors not to have kids life really can get you down when I look at everyone else enjoying life. It is so sad I am unable to work I have a bad cough from my lungs. I use to work at the local telephone company wich I was around folks all day with the med I take for my Kindneys makes it hard for my body to fight of infections an it also makes me have gingivitus of the gum. So one day I may have to ha all my teeth pull out. So I am really feeling Blue………

By: admin

admin — Wed, 06 Apr 2011 05:13:08 +0000

Donna,
I’ve only heard of the condition by name by reading some blogs. Have you tried looking on WebMD, Mayo Clinic, or Cleveland Clinic. Also Talk to your doctor about things. Good luck it’s never easy living with health conditions. You might need to see a specialist such as a rhemo or get another opinion. I’m not a doctor just a patient whose been throurgh a lot dealing with hospitals and doctors.

By: Donna

Donna — Mon, 21 Mar 2011 18:55:14 +0000

Just found this blog,looking for answers.Im 47 and have been in some type of pain for 30 years.Doc says Fibro,Artritis,high blood presure,Diabeties,Nerve damage,and now Grandulomas on my legs.I also have an enlarged liver and spleen,but the doc hasnt even tried to find out why,its been 10 years sience I was told first about them being enlarged.I’m now wondering about Sarcoidosis.Any one know any thing about this.

By: admin

admin — Mon, 07 Mar 2011 00:15:48 +0000

Allie,
Pretending I don’t have lupus hasn’t worked for me. I’ve had to pull up my shoes and tye my laces whether I feel like doing it or not. Gentle Hugs…
Depression isn’t easy.

By: Allie C

Allie C — Sat, 05 Mar 2011 05:08:32 +0000

I had a really tough time today and I wonder if I will ever figure out a way to balance my life. I seem to go through phases where I almost pretend I don’t have lupus and then I end up in the same position all over again…feeling like garbage. I was limping around today and I couldn’t even sit at the movies for the whole movie bc my legs and arms kept falling asleep…does anyone else out there feel like this? I also had a brain MRI last night… ugh…. had my first seizure last week… I just feel horrible and depressed…. I’m totally lost and feel so alone

By: Jolene

Jolene — Tue, 08 Feb 2011 15:08:31 +0000

I’m glad I found your blog! I have been out of work since October… my low back was hurting so bad. I’m on a bunch of pain meds 24/7 and it’s still severe. I saw a neurologist and she did bloodwork. Well my ANA is positive, and there’s a bunch of inflammation and whatnot. I’m seeing a rheumy in a couple weeks. My joints have started to ache so badly it hurts just typing. My knees are swollen up like baseballs and I walk like I’m 80. So no diagnosis as of yet, but I already have ulcerative colitis which is an autoimmune disease so I’m pretty convinced there’s another one going on. Because this is NOT normal for a 24 year old. My neuro did mention lupus though so I think that’s what she is suspesting. I haven’t had a rash though. This crap just started in October so I haven’t had any sun exposure since. I have been getting weird skin bumps and rashes, just little ones but it’s weird. I just hope I can get some answers soon.

Jolene

By: Becky

Becky — Wed, 02 Feb 2011 18:29:36 +0000

It is interesting to me the Vit D connection. Three years ago I drug myself to the doctor and told them I felt and walked like my 89 year old father, who has since pasted. Anyway someone finally did a Vit D test and it was less than 7! Now I know that it couldn’t be measured, it was that low!! Anyway since then I have been diagnosed with Fibro and borderline Lupus…which I know it just a matter of time before more and more symptoms show up…my question is does anyone have white little round spots on their legs or arms? And my family? I have given up. Especially my sisters, who “think it’s in my head”…and my daughter who refuses to acknowledge that I have had any difficulties. My husband, however, has finally read a lupus book that I have had, and is starting undrestand. He has seen the changes I have been going through in the last 5 years. Inspite of everything, I was able to lose 90 lbs and excersize regularly. That in inself is a mircle! You all know how much it hurts, but I find that after 10 sometimes 15 minutes, it doesn’t hurt as bad! Thank you for this page!

Becky